Make a Donation
 


  Member Area

NTSAD Mission
The mission of the National Tay-Sachs & Allied Diseases Association is to lead the fight to treat and cure Tay-Sachs, Canavan and related genetic diseases and to support affected families and individuals in leading fuller lives.

Our Vision
We will accomplish our mission by funding global cutting edge research, by helping to provide families with compassionate care and support and by collaborating effectively with the healthcare community to achieve our goals.

The National Tay-Sachs & Allied Diseases Association will:

  • Direct, fund and promote research to develop treatments and cures
  • Provide comprehensive support services to affected families and individuals
  • Guide prevention, education, awareness and screening through effective grassroots collaborations with chapters and affiliates.
  • Lead advocacy efforts as the recognized authority for this family of genetic diseases.

The related genetic diseases include over 50 lysosomal storage diseases and over 40 leukodystrophies.

Latest Research Developments!
Click here for the latest developments -
Tay-Sachs Gene Therapy Consortium July, 2010,
Progress Report now available


SHopping

Visit the NTSAD Shoppe!


Click here to view the Public service announcement on the importance of Tay-Sachs carrier testing, courtesy of DJ's Foundation for Tay-Sachs Disease
Disclaimer: National Tay-Sachs & Allied Diseases Association (NTSAD) does not engage in the practice of medicine. It is not a medical authority nor does it claim to have medical knowledge. In all cases, the NTSAD recommends that you consult your own physician regarding any course of treatment or medication.

©2007 National Tay-Sachs & Allied Diseases Association.
All Rights Reserved. PRIVACY STATEMENT/LEGAL NOTICE
This page was last modified 11/14/2007
Current Events

Annual Family Conference
March 31 - April 3, 2011
Hyatt Regency Boston
Boston, MA

NTSAD and Firstgiving

Create your own page with photos, music and video and raise awareness and funds for research and family support!

Click Here to see our page and other members’ pages.

Visit Firstgiving.com

Facebook

Create a free CarePage and connect with people who care.

NTSAD will receive a $10 from CarePages for each active page created!

Click here to start your free CarePage!

Curbside.MD
is a new healthcare search engine that provides answers to naturally phrased neurological questions. To start your search, please click below.

Upcoming Events

Donate-a-Dollar
Ongoing Nationwide

2nd Annual 'Fore Jack'
Memorial Golf Outing
Wednesday, August 18
Piping Rock Club
Locust Valley, NY

11th Annual Eagle for Emily
Golf Outing
Saturday, September 11
Riverside Golf Course
Indianapolis, IN

5th Annual Lacie's Legacy Memorial Walk
Sunday, October 16
Carroll Valley Park, Fairfield, PA

Bloomingdale Shopping Benefit
Wednesday, October 20 - Thursday, October 21
Bloomingdale's in
Chestnut Hill, MA

Emma's Walk for a Cure
Sunday, October 24
Long Beach Boardwalk
Long Beach, NY

3rd Annual Coming Together
in Boston: An Evening to
Benefit NTSAD

Wednesday, November 10
Genzyme Center,
Kendall Square
Boston, MA