Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases


By supporting families through a peer network, funding research in hope of a treatment, educating communities through grassroots partnerships and advocating for families and individuals with disabilities, we can empower people living with rare genetic diseases such as Tay-Sachs, Sandhoff, GM-1 and Canavan.

We must work to share our strength to enhance everyone’s ability to cope, provide hope, and raise awareness in populations all over the world. Being a rare GENEius is about education, science, empowerment, sharing #rareGENEius strength and prevention.

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