Contact Us

Have you or a member of your family been diagnosed with Tay-Sachs, Canavan, GM1, Sandhoff disease?

We’re here to listen and offer support.

We also provide individuals and families with the following:

• One-on-one, personalized support with the professional Family Services Team,
• Help in navigating a diagnosis and providing care
• Connection to other individuals and families in our Community
• Support for the whole family, including healthy siblings
• Virtual and in-person programming, including the Annual Family Conference.

If you’re looking for information on a specific disease, please visit our Diseases page.