Get Involved

Get involved and volunteer with NTSAD to make a meaningful difference in the lives of individuals and families affected by Tay-Sachs, Canavan, GM1 gangliosidosis, and Sandhoff disease. Whether you want to support fundraising efforts, advocate for the rare disease community, share professional expertise, or help families access critical resources, NTSAD offers many ways to contribute. By volunteering, you can help raise awareness, strengthen support services, and advance research programs that bring hope to individuals and families around the world.

Ways to Get Involved and Volunteer

There are many opportunities to get involved and volunteer with NTSAD, and each role makes an important impact. For example, volunteers support outreach initiatives, assist with events, contribute to committee projects, and help amplify the voices of affected individuals and families.

Our volunteer-driven committees help shape communications, fundraising, family support, advocacy, and research efforts. By joining one of these committees, you can use your skills and experience to help NTSAD further its mission and expand its reach.

Our current committees include:

• • Advocacy Committee
  • Development & Communications Committee
    • Imagine & Believe Special Event Committee
    • 70th Anniversary Campaign Committee
  • Family Services Committee
  • Research Committee (by invitation only)

Furthermore, volunteering provides an opportunity to learn more about the rare disease community while making a lasting difference. Together, we can increase awareness, strengthen family support programs, and help drive progress toward treatments and cures.

Ready to volunteer with NTSAD? Join our community today and help create a brighter future for the individuals and families we serve.