NTSAD relies on volunteers to help spread the word and raise awareness.
With the exception of our small staff, everyone involved with NTSAD, including its Board of Directors and Committee members, generously give their time, energy, and talents to NTSAD for free so we can spend less on administrative costs and more on raising awareness and finding a cure.
Join one of NTSAD’s committees and have a voice in what the organization does next.
- Communications Committee
Help develop, improve, and refine outreach materials and external communication efforts to support families and promote the mission and work of NTSAD.
- Development Committee
Share your ideas on how NTSAD can succeed in raising funds for research, family support, and the overall health of the organization.
- Family Services Committee
Be there for families and individuals when they come to NTSAD for guidance and support.
- Legislative Advocacy Committee
Join your voice with ours to advocate for rare disease legislative priorities at the local, regional, state, and federal levels.
- Research Initiative Committee
Work with a stellar group of members and get involved with the exciting progress on the research front.