National Tay-Sachs & Allied Diseases Association


NTSAD Staff Profiles

Becky Benson

Family Services Manager

Becky Benson is NTSAD’s Family Services Manager. As a member of the Family Services team since 2014, Becky provides one-on-one support and connection to families from diagnosis to bereavement. She also plans the Annual Family Conference, a four-day event for families, researchers, industry partners, and rare allies.

In addition, Becky helps families raise awareness and funds via NTSAD’s Day of Hope each year. Becky joined the NTSAD Community as a parent after her daughter, Miss Elliott, was diagnosed with Tay-Sachs in 2009.

To reach Becky, email her at

NTSAD Staff Profiles

Kathleen M. Flynn

Chief Executive

Diana Jussila

(formerly Pangonis)
Director of Family Services

Valerie Greger, PhD

Director of Research

Susan Keliher

Director of Development
and Communications

Sydnie Dimond

Development and
Communications Manager