Family Support and Engagement Manager

Becky Benson is NTSAD’s Family Support and Engagement Manager. As a member of the Family Services team since 2014, Becky provides one-on-one support and connection to families from diagnosis to bereavement. She also plans the Annual Family Conference, a four-day event for families, researchers, industry partners, and rare allies.

Additionally, Becky supports NTSAD’s community outreach efforts, assists in the planning of Imagine & Believe and helps families raise awareness and funds via NTSAD’s Day of Hope and Rare Disease Day each year. Becky joined the NTSAD Community as a parent after her daughter, Miss Elliott, was diagnosed with Tay-Sachs in 2009.

To reach Becky, email her at becky@ntsad.org.