National Tay-Sachs & Allied Diseases Association


Staff Profile

Caroline Aragon

Research Associate

Caroline Aragon joined NTSAD in February 2023. A certified genetic counselor, she is deeply committed to addressing rare diseases and has extensive clinical training. In addition, Caroline has conducted “hands-on” genetic testing, coordinated clinical studies, and performed basic science laboratory research. In her role as Research Associate, Caroline will help drive research and manage an international network of researchers, clinicians, and industry partners who collaborate with NTSAD through the Newborn Screening Consortium, LOTSS Think Tank, Research Initiative Committee and grant award process, and the Scientific Advisory Council.

To reach Caroline, email her at

NTSAD Staff Profiles

Kathleen M. Flynn

Chief Executive

Diana Jussila

(formerly Pangonis)
Director of Family Services

Valerie Greger, PhD

Director of Research

Susan Keliher

Director of Development
and Communications

Becky Benson

Family Services

Sydnie Dimond

Development and Communications Manager

Cynthia Perreault-Micale, PhD.

Research Associate