National Tay-Sachs & Allied Diseases Association


Staff Profiles

Kathleen M. Flynn

Chief Executive Officer

Kathleen M. Flynn joined NTSAD as CEO in November 2021. Kathy brings to NTSAD three decades of leadership and organizational management expertise spanning nonprofit, corporate, and academic environments.

Prior to NTSAD, Kathy has raised significant funds and has led teams across the country. She has built communities, engaged key stakeholders, and developed relationships with healthcare professionals and donors at The American Liver Foundation, The Arthritis Foundation, Yale Law School, and Mercy Learning Center.

Throughout her career, Kathy has collaborated with patients, caregivers, clinicians, and industry members — motivating and uniting them through identifying common goals. Kathy is responsible for the strategic vision of NTSAD, including advancing research, overseeing daily operations, and enhancing the team.

To reach Kathy, email her at

NTSAD Staff Profiles

Diana Jussila

(formerly Pangonis)
Director of Family Services

Valerie Greger, PhD

Director of Research

Susan Keliher

Director of Development
and Communications

Becky Benson

Family Services

Sydnie Dimond

Development and
Communications Manager