National Tay-Sachs & Allied Diseases Association
Leadership
Staff Profiles

Kathleen M. Flynn
Chief Executive Officer
Kathleen M. Flynn joined NTSAD as CEO in November 2021. Kathy brings to NTSAD three decades of leadership and organizational management expertise spanning nonprofit, corporate, and academic environments.
Prior to NTSAD, Kathy has raised significant funds and has led teams across the country. She has built communities, engaged key stakeholders, and developed relationships with healthcare professionals and donors at The American LiverLarge and complicated reddish-brown glandular organ located in the upper right portion of the abdominal cavity; secretes bile and functions in metabolism of protein and carbohydrate and fat; synthesizes substances involved in the clotting of the blood; synthesizes vitamin A; detoxifies poisonous substances and breaks down worn-out red blood cells. Definitions from: WordNet® More Foundation, The Arthritis Foundation, Yale Law School, and Mercy Learning Center.
Throughout her career, Kathy has collaborated with patients, caregivers, clinicians, and industry members — motivating and uniting them through identifying common goals. Kathy is responsible for the strategic vision of NTSAD, including advancing research, overseeing daily operations, and enhancing the team.
To reach Kathy, email her at kflynn@ntsad.org.