National Tay-Sachs & Allied Diseases Association


NTSAD Staff Profiles

Susan Keliher

Director of Development and Communications

Susan Keliher is the Director of Development and Communications and joined NTSAD in April 2020. Susan brings more than 25 years of fundraising experience and marketing expertise to NTSAD.

Working closely with the CEO, Susan raises more than $2 million in revenue each year. She also oversees NTSAD’s annual fundraising events, marketing, and outreach efforts. For the past two decades, Susan has raised significant funds and awareness in support of vulnerable families and youth.

To reach Susan, email her at

NTSAD Staff Profiles

Kathleen M. Flynn

Chief Executive

Diana Jussila

(formerly Pangonis)
Director of Family Services

Valerie Greger, PhD

Director of Research

Becky Benson

Family Services

Sydnie Dimond

Development and
Communications Manager