National Tay-Sachs & Allied Diseases Association


Staff Profile

Sydnie Dimond

Development and Communications Manager

Sydnie Dimond is Development and Communications Manager, where she manages donor recognition and coordinates NTSAD’s marketing efforts including social media, Community News, and the website. She also supports the planning of annual fundraising events, Imagine & Believe and Day of Hope.

Sydnie, who joined NTSAD in July 2020, has a passion for patient advocacy, and she brings fundraising and administrative experience from several nonprofits, including the March of Dimes.

To reach Sydnie, email her at

NTSAD Staff Profiles

Kathleen M. Flynn

Chief Executive

Diana Jussila

(formerly Pangonis)
Director of Family Services

Valerie Greger, PhD

Director of Research

Susan Keliher

Director of Development
and Communications

Becky Benson

Family Services