In 2019, The Miller family experienced the unimaginable when we lost our first born son to Tay-Sachs disease, a rare, progressive genetic disorder that currently has no cure. While nothing can replace the joy he brought to our lives, Shannon and I, along with the rest of our family are committed to honoring his memory by raising awareness and supporting the search for better treatments and, one day, a cure.

Our Poker Run is more than just a great day of golf cart rides, community, and fun—it’s an opportunity to make a meaningful difference. Every registration, and donation goes straight to NTSAD. This group was created to support organizations dedicated to Tay-Sachs research, family support, and hope for future generations.

We invite you to ride with us, support our cause, and help turn our family’s loss into a legacy of hope.