“Attending the Conference changed everything for me. It’s an incredible feeling to bond with other families who understand what you are going through and are willing to hold your hand through it all….. it’s hard to sum it up. The conference truly changed my life!”

-Bradley Martins, Sandhoff Family

The Conference provides families the rare opportunity to connect with people that truly understand. It is a place where they can receive support from professionals and other families and learn about the latest research and symptom management approaches.