The Jonathan and Amy Greenberg Canavan Research Fund

Supports research for Canavan disease.

Elliott Greenberg established the Johnathan and Amy Greenberg Canavan Fund was established in 2022 by in memory of his grandchildren.

The fund supports research to identify effective treatments for Canavan disease.

What is Canavan Disease?

Canavan disease is a progressive neurological genetic disorder caused by the absence of a vital enzyme known as aspartoacylase (ASPA). ASPA breaks N-acetylaspartate acid (NAA) into building blocks essential for building myelin. Myelin is a fatty membrane (also known as white matter) that forms a proactive coating around each nerve ensuring the nerve functions properly. Canavan disease is one of more than 50 genetically inherited disorders known as leukodystrophies.

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Mail or Phone

(617) 277-4463

Checks payable to NTSAD.

Mailing Address:
2001 Beacon Street
Suite 204
Boston, MA 02135.

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