Miracles for Mollie and MadelynMichael2023-09-19T14:00:34+00:00
Miracles for Mollie and Madelyn
The Ronaldson Family raises funds for research through their annual Day of Hope event.
Fundraising Goal: $20,000
It was in April of 2016 when our world came to a quick halt. Our two youngest daughters Mollie (now 16) and Madelyn (now 13) were diagnosed with Juvenile Sandhoff Disease, an ultra-rare neurodegenerative disease that is fatal in children. Pictures and videos remind us of how both girls were developing normally both in dance, soccer, and playing with friends until we noticed regression happening in their everyday lives. As with all children with this disease, the continued damage to the nerve cells has caused a loss in cognitive ability, loss of speech, and other health related issues.
How will the funds raised be used?
However, through the efforts of NTSAD and groups across the nation like our local community, financial support has been raised to advance the research for a potential treatment for Sandhoff to the point of human clinical trial. This trial has only just begun in which our youngest daughter may be eligible to participate in. Our youngest daughter is eligible to participate in this clinical trial. Other than their daily care, our primary focus is to help ensure the next generation of research can begin to which a cure can be found, and go beyond a treatment to minimize or stop further damage once it is done.
Thank you all for your support and care for our family!
To that end, we would like to thank everyone who supported us during our Miracles for Mollie and Madelyn Day of Hope events these past few years. Please visit Miracles for Mollie and Madelyn Facebook page for more event information.
While those gifted in the medical field work out a solution, we ask first and foremost for continued prayer in that God would allow the girls to be completely healed. We, as a family, are holding on to God’s Word and this following scripture specifically:
Rejoice in the Lord always; again I will say rejoice! Let your gentle spirit be known to all men. The Lord is near. Be anxious for nothing, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God, which surpasses all comprehension, will guard your hearts and your minds in Christ Jesus. Philippians 4:4-7
Under God’s Grace,
Jeff and Mandy Ronaldson and Aaron, Emma, Mollie, Madelyn
2001 Beacon Street
Boston, MA 02135.
Thank you from the bottom of our hearts for your support!
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National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging collaboration, and fostering community. Supporting families is the center of everything we do.
The content of this website is intended for informational purposes only and not intended to be a substitute for professional medical advice, diagnosis, or treatment.
The National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging collaboration, and fostering community. Supporting families is the center of everything we do.
Get the latest news from NTSAD about our Community, the research that provides hope, and what is happening in the world of rare disease.
2001 Beacon Street, Suite 204
Boston, MA 02135
(617) 277-4463 email@example.com
National Tay-Sachs & Allied Diseases Association
2001 Beacon Street, Suite 204, Boston, MA 02135
(617) 277-4463 | firstname.lastname@example.org