NTSAD New York Area FundMichael2023-09-15T20:23:59+00:00
NTSAD New York
Funds programs, family support and research.
New York Area – A Driving Force
Since 1957, families and dedicated volunteers in the New York Area have been a driving force in the growth and success of NTSAD in accomplishing its mission. Educational and fundraising activities in New York, New Jersey and the surrounding areas have been instrumental in supporting research, family services and carrier screening community programs for prevention.
The strong bond between the New York Area Chapter and the National organization, when it moved its operations to Boston in the 1980s, has been an asset to both. Over the years, the New York Area Chapter has helped to support and create unique programs for education and prevention, as well as supporting new research initiatives. Whenever the national organization was in need of grants or additional money for special projects, the New York Chapter has always been willing to fund them.
Strong Program and Partnership Support
Many programs and partnerships have benefited from the financial and volunteer support of the NTSAD New York Area Chapter and its family funds: Evan Lee Ungerleider Fund, Harry Hoffman Fund, Marion Yanovsky Research & Education Fund, and Handwerker-Heringer Fund for Research.
Programs funded and supported by the NTSAD New York Area Chapter include:
NTSAD Annual Family Conference
NTSAD Research Initiative
Tay-Sachs GeneOften referred to as the "unit of heredity." A gene is composed of a sequence of DNA required to produce a functional protein. More Therapy Consortium
Jacob Sheep Tay-Sachs Research Project
Free carrier testingCarrier testing can determine if a person carries one of the altered genes that cause a recessive disease. DNA carrier testing establishes the presences or absences of particular mutation(s). Enzymatic testing evaluates the level of activity of an enzyme, which when absent causes disease. In some diseases the enzyme test is not sensitive enough to determine carrier status. More days for thousands of people
Dor Yeshorim Carrier Screening Program for the Orthodox Jewish community
Laboratory Quality Control for Tay-Sachs Testing
Irish Tay-Sachs Study
Founding member of the Jewish Genetic Disease Consortium
Founding member of the Genetic Disease Foundation
Administration Transitioned to NTSAD
In June 2015, the New York Area Chapter of NTSAD transitioned its administrative responsibilities to the NTSAD National organization. All educational and fundraising activities will continue. The volunteers and supporters in the New York Area will continue to work with the national organization to accomplish its mission through support for Research, Education, Prevention and Family Services.
2001 Beacon Street
Boston, MA 02135.
Thank you from the bottom of our hearts for your support!
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National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging collaboration, and fostering community. Supporting families is the center of everything we do.
The content of this website is intended for informational purposes only and not intended to be a substitute for professional medical advice, diagnosis, or treatment.
The National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging collaboration, and fostering community. Supporting families is the center of everything we do.
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2001 Beacon Street, Suite 204
Boston, MA 02135
(617) 277-4463 email@example.com
National Tay-Sachs & Allied Diseases Association
2001 Beacon Street, Suite 204, Boston, MA 02135
(617) 277-4463 | firstname.lastname@example.org