Educating and Empowering Our Community
Curated Literature Collection

Curated Literature Collection
Explore educational webinars designed to provide trusted information, shared experiences, and meaningful support for individuals, families, healthcare professionals, researchers, and others impacted by Tay-Sachs, Canavan, GM1, or Sandhoff diseases.
Webinar content is expert-led and designed to educate, connect, and empower the NTSAD community.
Featured Webinar
Carrier Screening: What Families and Providers Need to Know
Staci Kallish, DO
September 10, 2026
Sponsored by:
Learn how families, advocates, and healthcare providers can work together to increase awareness of carrier screening and help individuals make informed reproductive health decisions.
Whether you’re sharing information with relatives or supporting patients in your practice, you’ll leave with resources and practical guidance to help move the conversation forward.
Support Our Educational Webinars
These educational programs are made possible through the support of partners committed to advancing resources for our rare disease community.
Contact our Development & Communications Manager, Erin Demers, for more information.


