Our Events
Attend the Annual Family Conference or Imagine & Believe, or Organize an Event to Help Raise Funds and Awareness.
Every year, NTSAD’s Annual Family Conference is an unforgettable experience for families and the cornerstone of our compassionate and expert family programming.
The Conference provides everyone the rare opportunity to connect with people who truly understand, learn about latest research and symptom management approaches, and support one another.
The NTSAD Community gathers each fall to envision a world where there are effective treatments for Tay-Sachs, Canavan, GM1, and Sandhoff diseases and to raise funds for family programs and services. At the event, NTSAD honors a person who has made a signficant impact on the rare community. The evening includes cocktail reception, silent auction, and inspiring speaking program. All are welcome.
Mark your calendar to attend our next Imagine & Believe on November 7, 2024!
Day of Hope
Our families and rare allies host Day of Hope events in their communities from June through October to raise awareness and funds for research. Every September, the NTSAD Community connects in one unified Day of Hope.
Family Events
We fund research and support families thanks to the generosity and hard work of families and their communities who channel their energy into raising awareness and funds for NTSAD.
Webinars
Our webinars brings experts to the rare community to discuss topics ranging from research advances to issues that impact the family. Attend an upcoming webinar or watch a previous one.
We Care for Rare
Facu y Giuli
Juvenile Tay-Sachs Disease
“Facu (12) y Giuli (16) ellos aman viajar y divertirse en familia”
Alejandra Saipert, Madre
