Our Events

Attend the Annual Family Conference or Imagine & Believe, or Organize an Event to Help Raise Funds and Awareness.

Every year, NTSAD’s Annual Family Conference is an unforgettable experience for families and the cornerstone of our compassionate and expert family programming.

The Conference provides everyone the rare opportunity to connect with people who truly understand, learn about latest research and symptom management approaches, and support one another.

On Thursday, November 10, 2022, the NTSAD Community gathered at the Royal Sonesta in Boston for the first in-person Imagine & Believe event in three years to commemorate NTSAD’s 65th Anniversary. At the event, which raises funds for programs and services, NTSAD honored research pioneer Guangping Gao, PhD, for revitalizing gene therapy and potential treatments for rare diseases, including his research toward treatments for Canavan Disease.

Mark your calendar to attend our next Imagine & Believe on November 9, 2023!

Day of Hope

Our families and rare allies host Day of Hope events in their communities from June through October to raise awareness and funds for research. Every September, the NTSAD Community connects in one unified Day of Hope.

Family Events

We fund research and support families thanks to the generosity and hard work of families and their communities who channel their energy into raising awareness and funds for NTSAD.


Our webinars brings experts to the rare community to discuss topics ranging from research advances to issues that impact the family. Attend an upcoming webinar or watch a previous one.

We Care for Rare

Facu y Giuli
Juvenile Tay-Sachs Disease

“Facu (12) y Giuli (16) ellos aman viajar y divertirse en familia”

Alejandra Saipert, Madre