2026 Research Day Presentations
Research Updates
Click the image below to access the 2026 Annual Family Conference Research Updates booklet, which contains summaries from companies, institutions, and researchers that serve as updates on their work.
“The support and guidance we received in the meetings was invaluable in helping us to stay on our feet, band together as a family and to continue to support her brother. There was so much comfort in knowing we were with other parents who completely understand the way we are feeling.”
“For our family attending the conference is like coming ‘home’ to a family that understand and where you don’t have to explain yourself…you just get unconditional love and acceptance.”
“Attending conference changed everything for me. It’s an incredible feeling to bond with other families who understand what you are going through and are willing to hold your hand through it all….. it’s hard to sum it up. The conference truly changed my life!”
Thank You to Our
2026 Sponsors
PRESENTING
Doyle Foundation
BELIEVE
Aspa Therapeutics
COURAGE
Anonymous
Chris Chapman and William Ohle
GNB Charitable Foundation
Hamilton Company Charitable Foundation
Laura and Simeon Schindelman
HOPE
Azafaros
IntraBio
Cynthia Lemere and Gerald Cox
New York Area Fund
Polaryx Therapeutics
Sanofi
INSPIRATION
BillionToOne
Blu Genes Foundation
Jaxson’s Train of Hope
JCR Pharmaceuticals and MEDIPAL
LabCorp
Lysosomal & Rare Disorders Research & Treatment Center
The Mathew Forbes Romer Foundation*
FAMILY & FRIENDS
Aaron’s Fund of NTSAD
B Brave Foundation*
Curant Health
Bonnie* and Barry Davis in Loving Memory of Adam
Michael and Brittany Fox-Muniz in Loving Memory of Jasmine
Staci Kallish, DO*
The Manning Family in Loving Memory of Dylan
Propel Careers*
Susan* and Alan Roden and Family
Ultragenyx
IN-KIND DONATIONS
Jersey Mike’s
Olive Garden
*NTSAD Board Member
2026 Conference Sponsorship Opportunities
Questions about sponsoring the conference or interested in hosting a focus group with families? Click the link below to view our available options or please contact the Development Office or by phone (617) 277-4463.
