See what families say about the Conference experience.
“For our family attending the conference is like coming ‘home’ to a family that understand and where you don’t have to explain yourself…you just get unconditional love and acceptance.”
“The support and guidance we received in the meetings was invaluable in helping us to stay on our feet, band together as a family and to continue to support her brother. There was so much comfort in knowing we were with other parents who completely understand the way we are feeling.”
“Attending conference changed everything for me. It’s an incredible feeling to bond with other families who understand what you are going through and are willing to hold your hand through it all….. it’s hard to sum it up. The conference truly changed my life!”

2023 Annual Conference Sponsorship Opportunities
You can support families by sponsoring the Annual Family Conference.
For questions about sponsoring the Conference, please contact Susan, Director of Development and Communications, via email (skeliher@ntsad.org) or by phone (617) 277-4463.
Presenting
- Anonymous
- The Doyle Foundation
- Sanofi
Believe
- Laura and Simeon Schindelman
Courage
- Aspa Therapeutics, A BridgeBio Company
- Chris Chapman* and William Ohle in memory of Emma Artinian
Hope
- Azafaros
- Cameron and Hayden Lord Foundation*
- Gerald Cox, MD, PhD*
- Hamilton Company Charitable Foundation
- In Memory of Dylan Manning and Stewart Altman
- Mathew Forbes Romer Foundation*
- Passage Bio
Inspiration
- Amicus Therapeutics
- B Brave Foundation*
- Blu Genes Foundation
- EveryLife Foundation
- Lysosomal & Rare Disorders Research & Treatment Center
- Jaxson’s Train of Hope
- JCR Pharmaceuticals
- Myrtelle
- NTSAD New York Area Fund*
Families and Partners
- Lauren Celano*
- Codexis
- Bonnie* and Barry Davis in Memory of Adam
- Monica and Gary Gettleman
- Staci Kallish* and Chris Beer
*NTSAD Board Member