Additional Conference Videos
“Attending conference changed everything for me. It’s an incredible feeling to bond with other families who understand what you are going through and are willing to hold your hand through it all….. it’s hard to sum it up. The conference truly changed my life!”
“For our family attending the conference is like coming ‘home’ to a family that understand and where you don’t have to explain yourself…you just get unconditional love and acceptance.”
“The support and guidance we received in the meetings was invaluable in helping us to stay on our feet, band together as a family and to continue to support her brother. There was so much comfort in knowing we were with other parents who completely understand the way we are feeling.”
2025 Conference Sponsorship Opportunities
Download the Conference Sponsorship form below to learn more and become a sponsor today!
Questions about sponsoring the Conference or interested in hosting a focus group with families? Please contact the Development Office here or by phone (617) 277-4463.
This conference is made possible thanks to our generous sponsors.
Presenting
Anonymous
GNB Charitable Foundation
Doyle Foundation
Believe
Aspa Therapeutics
Sanofi
Laura and Simeon Schindelman
Courage
Christine Chapman and
William Ohle
Hope
Azafaros
Dr. Gerry Cox and Cindy Lemere
Hamilton Company Charitable Foundation
IntraBio
Natera
NTSAD New York Area Fund
Inspiration
Blu Genes Foundation
Curant Health
Jaxson’s Train of Hope
JCR Pharmaceuticals
Lysosomal & Rare Disorders Research & Treatment Center (LRDRTC)
Mathew Forbes Romer Foundation
Myrtelle
Vayle’s Fund
Family
Aaron’s Fund of NTSAD
B Brave Foundation
Bonnie and Barry Davis
in loving memory of Adam*
Monica and Gary Gettleman
Staci Kallish*
The Manning Family
in memory of Dylan
Propel Careers (Lauren Celano*)
Susan* and Alan Roden and Family
*NTSAD Board Member