Day of Hope

Raise Awareness and Funds for Research and Family Services

Move a Mile for Hope

Join us on September 19, 2026, for the 16th Annual Day of Hope, where our community will move a mile in their own way to raise awareness and critical funds for research and support for individuals and families affected by Tay-Sachs, Canavan, GM1, and Sandhoff diseases.

Walk, run, stroll, roll, bike, or dance! Do it solo or gather your friends, family, or team.

No matter how you move, you’re moving hope forward.

$839,564

Funds raised since the first Day of Hope in 2011!

Every mile matters. Every dollar drives progress.

Since 2011, our community has raised more than $839,000 to accelerate research and support families.

NTSAD’s Research Initiative has:

  • Awarded more than 78 research grants
  • Invested $5.2 million in critical research
  • Helped unlock more than $30 million in follow-on NIH support

Day of Hope Fundraisers

“Turn” the Page on Tay-Sachs2026-07-06T16:57:27+00:00
“Turn” the Page on Tay-Sachs
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“Turn” the Page on Tay-Sachs

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Allie’s Day of Hope2025-08-21T15:07:08+00:00
Allie’s Day of Hope
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Allie’s Day of Hope

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Annual Jase Benefit2026-06-16T13:31:21+00:00
Annual Jase Benefit
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Annual Jase Benefit

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Brodryck’s Beanbag Tournament2024-07-29T20:10:05+00:00
Brodryck’s Beanbag Tournament
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Brodryck’s Beanbag Tournament

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Cayden’s Day of Hope2024-07-29T23:49:49+00:00
Cayden’s Day of Hope
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Cayden’s Day of Hope

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Chloe’s Day of Hope2024-07-29T20:14:07+00:00
Chloe’s Day of Hope
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Chloe’s Day of Hope

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Eli’s Cruise for a Cure2026-06-15T15:11:01+00:00
Eli’s Cruise for a Cure
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Eli’s Cruise for a Cure

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Isaac’s Day of Hope2024-09-04T17:53:45+00:00
Isaac’s Day of Hope
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Isaac’s Day of Hope

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Jaxson’s Train of Hope2025-06-23T20:00:03+00:00
Jaxson’s Train of Hope
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Jaxson’s Train of Hope

Jessie’s Rally of Hope2026-04-21T14:22:08+00:00
Jessie’s Rally of Hope
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Jessie’s Rally of Hope

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Support with a Day of Hope T-Shirt

Get set to Move a Mile with us and show you care for rare with a Move A Mile NTSAD-branded tee or create your own custom tee in honor or memory of your rare loved one with our ready-made templates.

$10 of every t-shirt sold raises funds towards critical research and family services for Day of Hope.