Day of Hope

Raise Awareness and Funds for Research and Family Services

$789,579

Fundraising Goal: $1,000,000

Move a Mile for Hope

Mark your calendars to Move a Mile for Hope for our 15th Annual Day of Hope on Saturday, September 20, 2025! It’s easy. You can walk, drive, stroll, roll, or even dance around your neighborhood. Grab your family and friends to join you. Don’t forget to snap a photo and post on social as we raise awareness and funds for support and research. Donate today!

Since the first Day of Hope held in September 2011, the NTSAD Community has raised more than $789,579 for research.

Make a Day of Hope Donation!

Bringing Communities Together

Each year families, friends, neighbors, and colleagues come together for a “Day of Hope” and host an event to raise awareness and critical funds for research. All summer long, families hosted walks, runs, dance parties, pancake breakfasts, trivia nights, cornhole tournaments, Facebook fundraisers, t-shirt campaigns, and more in support of NTSAD families.

You also can purchase your own Day of Hope t-shirt or even create one to honor your rare loved one, too. A portion of net proceeds from t-shirt sales support NTSAD.

Interested in hosting a Day of Hope event? Email Becky Benson (becky@ntsad.org), Family Support and Engagement Manager.

Move a Mile for Hope

Join other rare families and allies in NTSAD’s Day of Hope as together we raise rare awareness and critical funds to support families and research. For more information, email Becky.

Making an Impact on NTSAD’s Mission

The Day of Hope supports NTSAD’s Research Initiative and family support. Since its inception in 2002, NTSAD’s Research Initiative has awarded more than 75 grants and provided more than $5.1 million in funding. The data generated in some of these projects funded by NTSAD grant opportunities were leveraged to obtain future funding from larger National Institutes of Health (NIH) grants, resulting in over $30 million toward finding cures.

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