Imagine & Believe

Connection, Collaboration, and Community

2025 Honorees
Blyth & Charlie Lord
Alison & Tim Lord

THANK YOU TO EVERYONE WHO JOINED US AND/OR SUPPORTED OUR 2025 IMAGINE & BELIEVE EVENT.

The NTSAD community came together for an inspiring evening of connection and hope, raising over $200,000 to advance our mission. Thanks to your generosity, and a remarkable gift from the Lord family, Imagine & Believe 2025 was one of our most successful fundraising events to date.

This year, we proudly honored Blyth & Charlie Lord and Alison & Tim Lord for their extraordinary 25-year commitment to NTSAD. Their leadership, advocacy, and enduring generosity have made a lasting impact on generations of families affected by rare genetic diseases. On this special night, they deepened that legacy with a transformative gift that will fuel groundbreaking research for years to come.

NTSAD received the largest single gift in its 68-year history – a $1 million contribution from the Cameron and Hayden Lord Foundation. The surprise announcement, which was made on the evening of Imagine & Believe, brought more than 150 supporters and families in attendance to their feet for multiple standing ovations, and moved many to tears.

Funds raised during Imagine & Believe and through the associated online auction directly support strategic research and advocacy initiatives and, provide connections and resources to families who are newly diagnosed, actively caring for or mourning the loss of an affected love one. Net proceeds from the event allows NTSAD to remain a patient- and donor-centric organization, united in the vision of a world free from Tay-Sachs, Canavan, GM1, and Sandhoff diseases.

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2025 Imagine & Believe Honorees:
Blyth & Charlie Lord and Alison & Tim Lord

NTSAD is delighted that Blyth & Charlie Lord and Alison & Tim Lord are our 2025 Imagine & Believe honorees! We are incredibly grateful for the countless ways the Lords have supported NTSAD’s mission over the past 25 years, and we look forward to recognizing them at our annual fundraising event.

The Lords have been integral members of the NTSAD community for two-and-a-half decades, contributing in countless ways, particularly through leadership roles on our Board of Directors and by driving research and advocacy. In memory of their children who died from the infantile form of Tay-Sachs disease, they founded The Cameron and Hayden Lord Foundation and have supported our mission through research advancements, the Annual Family Conference, the Research Director position – and so much more.

Their shared family journey has shaped their remarkable work—Blyth created the Courageous Parents Network, empowering caregivers of children with serious medical conditions, while Tim leads DreamYard, an organization focused on social justice and equity for Bronx youth.

We are deeply grateful for their dedication and look forward to recognizing them at Imagine & Believe.

SPONSORSHIP
Learn more about sponsoring an evening of camaraderie, connection, and celebration of the NTSAD community.

Contact Erin Demers, Development Manager, with questions.

Our Deepest Appreciation to Our
2025 Imagine & Believe Sponsors

BELIEVE
Aspa Therapeutics

HOPE
Christine Chapman and William Ohle
Caitlin and Michael Gladstone
Cynthia Lemere and Gerald Cox

INSPIRATION
Amicus Therapeutics
Haley Guiliano LLP
JCR Pharmaceuticals
Jayne and Bruce Gershkowitz
Sanofi

DETERMINATION
Aaron’s Fund
Azafaros
Evan Lee Ungerleider Fund and New York Area Fund

Innovation Lab Services
Lori and Lee Greenwood
Sue Kahn and Dan Kirschner

Mathew Forbes Romer Foundation*
Myra Sack and Matt Goldstein*

PwC
Carla and David Steckman

DREAM
Adelman Associates
B Brave Foundation*
Barnett Law Office LLC
Blu Genes Foundation
Bradley and Nadia Campbell
IntraBio
JScreen
Jon Lawrence and Ashlee Suran*
Propel Careers*
Susan and Alan Roden and Family*
Tito’s Handmade Vodka
Ultragenyx

RARE
Bonnie and Barry Davis*
Serene Forte*
Staci Kallish, DO*
Amy and Jonathan Katz*
David Zanella*

ADVOCATE
Ashley Flynn
The Buryk Family
Jamie Ring Advocacy Consulting
Park Street Strategies

*NTSAD Board Member