Imagine & Believe

Connection, Collaboration, and Community

2024 Honorees
The Buryk Family

November 7, 2024, 6 to 9 p.m. ET

Le Méridien Boston Cambridge

Join us for NTSAD’s signature event, Imagine & Believe, where we envision a world with effective treatments for Tay-Sachs, Canavan, GM1, and Sandhoff diseases. Imagine & Believe brings together families, members of industry, clinicians, researchers, and rare allies for a reception, silent auction, and inspiring speaking program to raise critical funds for family services, programs, and research.

Admission begins at $225 per guest, and sponsorship opportunities range from $500-$25,000. Donations and digital tribute ads are welcome.

Questions? Contact us at 617-477-2463.

Attire is business or cocktail attire.  Some guests will arrive in business casual. Some women wear a dressy suit, or something festive, but it is not a gala requiring a long dress. It is a range. Some men wear ties; others wear a sport coat. The reception is 90 minutes and has limited seating, so we recommend comfortable shoes. Everyone will be seated for dessert and the speaking program.

2024 Imagine & Believe
Sponsorship Opportunities

To sponsor Imagine & Believe or purchase an individual admission or digital program ad, please contact Susan Keliher, Director of Development and Communications  at skeliher@ntsad.org.

Honoring the Buryk Family

Each year at NTSAD’s signature fundraising event, Imagine & Believe, we recognize an individual or group who makes a significant and positive impact on the rare disease community. We proudly announce this year’s honorees are Buryk family members–parents Alexis and Bill, and twin daughters Katie and Allie, who both have Late-Onset Tay-Sachs disease, and eldest daughter Elizabeth and her husband Jonathan Rego.

In 2014, the Buryk family launched the Katie & Allie Buryk Research Fund at NTSAD. To date, the Buryk Research Fund has raised nearly $1,100,000 for research for Late Onset Tay-Sachs and Sandhoff (LOTSS) diseases with the help of more than 2,400 donors. You may have seen the Buryk Family’s powerful ad which runs quarterly in The New York Times.

When launching the Katie & Allie Buryk Research Fund a decade ago, Katie shared what motivates her, “I have decided to go public and try to raise money, awareness and mount a search for a cure. Sure, it’s for me and Allie, but it is also for infants and kids who aren’t as lucky as we are. And it’s for the families who must embark on this difficult, sad, and baffling journey.”

The Buryk Research Fund has supported research grants, helped NTSAD hire our first Research Director, and hosted six Late Onset Think Tank meetings to foster collaboration and innovation in advancing research and clinical trials. The Buryk Family has made a substantial impact on the rare community and helped to drive not only research for Tay-Sachs and Sandhoff diseases, but awareness for all onset levels of Tay-Sachs and Sandhoff as well as Canavan and GM1 diseases. The family’s New York Times ad has helped at least two women in our community receive a proper diagnosis.

Join us as we honor the Buryk Family and Save the Date for Imagine & Believe on November 7, 2024, at Le Meridien Hotel in Cambridge, Massachusetts.