Imagine & Believe

November 7, 2024, 6 to 9 p.m. ET

Le Méridien Boston Cambridge

Join us for NTSAD’s signature event, Imagine & Believe, where we envision a world with effective treatments for Tay-Sachs, Canavan, GM1, and Sandhoff diseases. Imagine & Believe brings together families, members of industry, clinicians, researchers, and rare allies for a reception, silent auction, and inspiring speaking program to raise critical funds for family services, programs, and research, emceed by WCVB Channel 5 Anchor, Rhondella Richardson.

Questions? Contact us at development@ntsad.org.

Attire is business or cocktail attire.  Some guests will arrive in business casual. Some women wear a dressy suit, or something festive, but it is not a gala requiring a long dress. It is a range. Some men wear ties; others wear a sport coat. The reception is 90 minutes and has limited seating, so we recommend comfortable shoes. Everyone will be seated for dessert and the speaking program.

Book a hotel room at Le Méridien Hotel Boston Cambridge here.

(Please note, if you are having difficulty booking a hotel room online, it is recommended you use a computer vs. a smart phone.)

Featuring Emcee Rhondella Richardson

Honoring the Buryk Family

Each year at NTSAD’s signature fundraising event, Imagine & Believe, we recognize an individual or group who makes a significant and positive impact on the rare disease community.

We proudly announce this year’s honorees are Buryk family members–parents Alexis and Bill, and twindaughters Katie and Allie, who both have Late-Onset Tay-Sachs disease, and eldest daughter Elizabeth and her husband Jonathan.

In 2014, the Buryk family launched the Katie & Allie Buryk Research Fund at NTSAD. To date, the Buryk Research Fund has raised nearly $1,100,000 for research for Late Onset Tay-Sachs and Sandhoff (LOTSS) diseases with the help of more than 2,400 donors. You may have seen the Buryk Family’s powerful ad which runs quarterly in The New York Times.

When launching the Katie & Allie Buryk Research Fund a decade ago, Katie shared what motivates her, “I have decided to go public and try to raise money, awareness and mount a search for a cure. Sure, it’s for me and Allie, but it is also for infants and kids who aren’t as lucky as we are. And it’s for the families who must embark on this difficult, sad, and baffling journey.”

The Buryk Research Fund has supported research grants, helped NTSAD hire our first Research Director, and hosted six Late Onset Think Tank meetings to foster collaboration and innovation in advancing research and clinical trials. The Buryk Family has made a substantial impact on the rare community and helped to drive not only research for Tay-Sachs and Sandhoff diseases, but awareness for all onset levels of Tay-Sachs and Sandhoff as well as Canavan and GM1 diseases. The family’s New York Times ad has helped at least two women in our community receive a proper diagnosis.

Join us as we honor the Buryk Family at Imagine & Believe on November 7, 2024, at Le Méridien Hotel in Cambridge, Massachusetts.

DETERMINATION

Adelman Associates

Tedra Cannella

Evan Ungerleider Fund /
New York Area Fund of NTSAD

Lori and Lee Greenwood

Staci Kallish, DO*

Jon Lawrence* and Ashlee Suran

Mathew Forbes Romer Foundation

DREAM

B Brave Foundation*

Blu Genes Foundation

JScreen

Propel Careers*

RARE

Jamie Ring Advocacy Consulting*

*NTSAD Board