Imagine & Believe

Connection, Collaboration, and Community

Full Event Video

Family Video

Tribute to Former Executive Director Sue Kahn

Thank you for Imagining & Believing with NTSAD. Because of you, we celebrate our hard work, which has led to NINE clinical trials—one completed, and eight active trials—for Tay-Sachs, Canavan, GM1, and Sandhoff diseases. NTSAD remains indebted to patients and their families, researchers, clinicians, industry, donors and rare allies for helping us to reach this monumental milestone.

On October 28, 2021, more than 250 members of our Community gathered virtually raising $115,000 for NTSAD’s Family Services. Thank you to our sponsors and supporters for making this possible.

We also must acknowledge Myra Sack and Matt Goldstein, parents of Havi; Renny and Eric Drinks, parents of Shoshanna; Karen and Jeff Arbetter, parents of Jason and Josh; Dawn Mariano, parent of Vayle; and Jessica Lindqvist and Niclas Flysjö, parents of Hampus, Julia, and Isabella, for sharing their stories, the unwavering love for their children, and hope for the future. Thank you. Your efforts raised awareness, and more importantly, support families like yours.

At the event, we honored Sue Kahn, NTSAD’s Former Executive Director, who led the organization for the 14 years. In case you missed the event or the many tributes to Sue Kahn, you may watch it now. Thank you for your extraordinary leadership! We miss you, Sue. It’s not too late to make a gift in honor of Sue!

Make a gift in honor of Sue Kahn.


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*NTSAD Board Member