Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

2021 Annual Family Conference

April 22 – 25, 2021 marks the 43rd Annual Family Conference and the second, virtual conference to ensure the ongoing safety of vulnerable individuals and their families.

2021 marks the 43rd Annual Family Conference and the second, virtual conference. Whether virtual or in person, NTSAD provides families with a safe space to support and learn from one another, to gain knowledge directly from researchers and industry working on potential therapies, and to contribute and share their experiences as our community navigates the launch of several clinical trials. In 2020, the virtual conference was our largest ever with more than 400 registrants including nearly 150 families participating from across the U.S., Canada, and 10 other countries.

The Conference focuses on sessions that are most valued by our families.  In addition, there are webinars and Zoom meetings held both before and after the conference.

Register Now for the Conference

View the 2021 Virtual Annual Family Conference Schedule

Session topics include:

  • Support groups for parents, caregivers, adults with Late Onset, and extended family
  • Symptom and health management
  • Research session with specific disease breakout groups
  • Bereavement support
  • Commemoration ceremony
  • Activities for affected children and their siblings

Please join us in creating an informative and unforgettable experience for rare families by sponsoring NTSAD’s Annual Family Conference.

To sponsor the conference email Susan Keliher, This email address is being protected from spambots. You need JavaScript enabled to view it.

Your Sponsorship Make a Difference

The NTSAD Annual Family Conference is made possible by the generosity of industry partners, foundations, families and individuals. Sponsorship goes toward family programming and support as well as sustaining NTSAD’s family services. While a virtual conference does not incur traditional travel, hotel, food and beverage costs, NTSAD does incur expenses for event hosting and production, software, and supplies, including a conference gift box with activities for families.

SPONSORSHIP OPPORTUNITIES

BELIEVE Sponsor $25,000

  • Name and logo as LEAD BELIEVE Sponsor during all online sessions during four-day conference.
  • Recognition in all conference digital materials including event mobile app, conference website, conference gift box for families, and conference newsletters.
  • Conference T-shirts for twenty employees/individuals.

COURAGE Sponsor $15,000

  • Name and logo as COURAGE Sponsor during all online sessions during four-day conference.
  • Recognition in all conference digital materials including event mobile app, conference website, conference gift box for families, and conference newsletters.
  • Conference T-shirts for fifteen employees/individuals.

HOPE Sponsor $10,000

  • Name and logo as HOPE Sponsor during all online sessions during four-day conference.
  • Recognition in all conference digital materials including event mobile app, conference website, conference gift box for families, and conference newsletters.
  • Conference T-shirts for ten employees/individuals.

INSPIRATION Sponsor   $5,000

  • Name and logo as INSPIRATION Sponsor during all online sessions during four-day conference.
  • Recognition in all conference digital materials including event mobile app, conference website, conference gift box for families, and conference newsletters.
  • Conference T-shirts for five employees/individuals.

DETERMINATION Sponsor $2,500

  • Name and logo as DETERMINATION Sponsor during all online sessions during four-day conference.
  • Recognition in all conference digital materials including event mobile app, conference website, conference gift box for families, and conference newsletters.
  • Conference T-Shirts for two employees/individuals.

COMMUNITY Sponsor  $1,000

  • Name and logo as COMMUNITY Sponsor during all online sessions during four-day conference.
  • Recognition in all conference digital materials including event mobile app, conference website, conference gift box for families, and conference newsletters.
  • Conference T-shirts for two employees/individuals.

 


 

Why attend?

Virtual Conference

Register Now

View the Conference Schedule

Please contact Becky Benson, Conference and Family Services Coordinator here with any questions or concerns that are conference related.

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