Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

From Brian Manning, President

Dear Friends,

Thank you for finding your way to NTSAD's website.  I hope you find it to be a helpful resource in your quest for knowledge and answers.

When our son, Dylan was diagnosed with Tay-Sachs disease, my wife, Sherri, and I turned to NTSAD for support and hope when we felt there was none. Through NTSAD we were able to connect with others who were experiencing or had already experienced what we were living through.  The support of the NTSAD families helped us, as well as our immediate and extended family members, through the most difficult time in our lives.

NTSAD provides families with an international network of affected families, scientists, caregivers, and healthcare professionals. We also offer information and services to others who share a common vision of a future free of Tay-Sachs, Canavan, and over 100 allied diseases.  

I invite you to explore our website, meet our families, and learn how NTSAD:

  • Supports the research to develop treatments and cures;
  • Provides comprehensive support services for affected families and individuals;
  • Encourages prevention and awareness through grassroots collaborations with chapters and affiliates; and
  • Leads advocacy efforts as the recognized authority for this family of genetic diseases.

We continue to improve the content and format of our website, and always welcome your feedback and inputs. Please let our staff and me know what we can do to improve the effectiveness of our website.

Most sincerely,


Brian Manning