Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

Board of Directors

OFFICERS  

Staci Kallish, DO* 

President

Oralea Marquardt* 

Vice President 

Michael Richards* 

Treasurer

Ruth Feldman 

Secretary

DIRECTORS (TERM EXPIRING JUNE, 2021) 

Merle Adelman 

Risa Asnen 

Gerry Cox, MD, PhD 

Ruth Feldman 

Staci Kallish, DO*  

Edna Kaplan  

Blyth Lord* (immediate past president) 

Brian Manning   

Oralea Marquardt*  

Michael Richards* 

Jamie Ring 

Kevin Romer 

Carla Steckman 

Shari Ungerleider 

DIRECTORS (TERM EXPIRING JUNE, 2022) 

Lauren Celano 

Bonnie Davis 

Karen Grinzaid, MS, LCGC, CCRC 

Jonathan Katz 

Sophia Pesotchinsky 

Sara Scaparotti 

Amy Speak  

Marion Yanovsky 

Past Presidents

Blyth Lord
Brian Manning
Shari Ungerleider
Kevin Romer
Thomas P. Lord
Bradley L. Campbell
John F. Crowley, JD
Mark P. Madsen
Daniel N. Turner, Esq.
Meredith R. Margolis, PhD
Yvonne Sacks
Daniel Greenberg, Esq.
Sedra Schiffman
Steven Laver, Esq.*
Jayne Mackta
Judith Saperstein
Claire Kahn
Evelyn Sussman*
Ruth Dunkell*
* deceased

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