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Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases

Job Postings

NTSAD Job Posting: Full-Time Director of Development

We are seeking a Development Director to lead our efforts to raise funds to support affected families and to find a cure for Tay-Sachs, Canavan and related rare genetic diseases. This is a special opportunity to join the organization now as we embark upon a year-long 60th anniversary celebration.  The ideal candidate will have a successful track record meeting or exceeding annual fundraising goals utilizing various fundraising strategies, including Annual Fund giving, events, and grants.  Candidates will have the capability to build, develop, and retain strong, positive relationships with donors and NTSAD family members. S/he will be a creative thinker with the ability to inspire and communicate effectively, both in person and through written communications, with individuals, foundations, and board members, and be comfortable asking for money. S/he will work well in a small collaborative environment, be sensitive and be flexible. Personal connection or experience with the rare disease community is not required, but is preferred.

A Bachelor’s degree and a minimum of 5 years of progressively responsible fundraising experience are necessary. Please contact Sue Kahn, Executive Director, This email address is being protected from spambots. You need JavaScript enabled to view it., to submit a resume or for more information.

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