Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

Mission and Vision


NTSAD leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging collaboration, and fostering community. Supporting families is the center of everything we do.


We will accomplish our mission by funding global cutting edge research, by helping to provide families with compassionate care and support and by collaborating effectively with the healthcare community to achieve our goals.

The National Tay-Sachs & Allied Diseases Association will:

  • Direct, fund and promote research to develop treatments and cures
  • Provide comprehensive support services to affected families and individuals
  • Guide prevention, education, awareness and screening through effective grassroots collaborations with chapters and affiliates
  • Lead advocacy efforts as the recognized authority for this family of genetic diseases

The related genetic diseases include over 50 lysosomal storage diseases and over 40 leukodystrophies.