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Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases

Staff Profiles

Sue Kahn

Sue Kahn joined NTSAD as Executive Director in September 2007.  Sue first learned about NTSAD while at Genzyme Genetics, where prior to NTSAD, she was Senior Director of Business Development.  Sue is responsible for the strategic vision for NTSAD and for day-to-day management.  She has been focusing on NTSAD's research goals by updating the research strategy and collaborating with academia and biotech. To reach Sue, email her at This email address is being protected from spambots. You need JavaScript enabled to view it..


Joan Lawrence

Joan Lawrence joined NTSAD in April 2013 as Director of Development. Joan is a dynamic, results-driven development professional with over 20 years of experience directing successful individual and corporate campaigns, capital campaigns and special events. To reach Joan, email her at This email address is being protected from spambots. You need JavaScript enabled to view it..


Ingrid Miller

Ingrid Miller joined NTSAD as Development and Administrative Assistant in 2009.  Her primary areas of responsibility are gift processing and acknowledgement, and database maintenance.  Prior to working at NTSAD, Ingrid worked at Quota, an international social service group based in Washington, DC. To reach Ingrid, email her at This email address is being protected from spambots. You need JavaScript enabled to view it..


Diana Pangonis

Diana Pangonis is NTSAD's new Director of Family Services and Communications.  She joined NTSAD in December 1995. Since then she has held the positions of Development Manager, Family Services Coordinator, Interim Executive Director, and most recently Communications Manager. To reach Diana, email her at This email address is being protected from spambots. You need JavaScript enabled to view it.


Becky Benson

Becky Benson assumed the role of Conference Coordinator in 2014 planning the 37th Annual Family Conference in Reston, Virginia. Becky joined NTSAD as a parent after her daughter, Miss Elliott, was diagnosed with Tay-Sachs in 2009. To reach Becky, email her at This email address is being protected from spambots. You need JavaScript enabled to view it..

 

Emily Randall

Emily Randall joined NTSAD in September 2016 as Development and Communications Associate, a few months after graduating from Hamilton College in Clinton, NY with a degree in Anthropology. To reach Emily, email her at This email address is being protected from spambots. You need JavaScript enabled to view it.

 

 

  

 

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