Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases

COVID-19 message from NTSAD

It is with heavy hearts that, for the first time since the inception of the Annual Family Conference in 1978, we have decided to cancel the 2020 Annual Family Conference due to the growing concern of the health and safety of our families because of the COVID-19 crisis, as well as current meeting guidelines and travel restrictions. We did not make this decision lightly. We know the conference means so much to many families. We share in the disappointment over this cancellation, but it is clear that at this point in time it is the only decision to be made and what is best for all involved.

We are developing an online program to bring the conference to you virtually. Please save the same dates, May 28-31, for our virtual Conference. We will continue sharing information with you as it develops.

We will soon be addressing and following-up with you about 2020 conference registrations paid-to-date and Helping Hand raffle tickets sold. If you have already made your hotel reservation, please contact the Renaissance at (303) 399-7500 to cancel, and/or if you booked your flight, please contact your airline to cancel your travel arrangements.

We hope that you and your family are all able to stay safe and well as we all continue to adapt while navigating the current situation. In the meantime, if you have any questions please feel free to email This email address is being protected from spambots. You need JavaScript enabled to view it. or This email address is being protected from spambots. You need JavaScript enabled to view it..

 

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