Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases

Emma's Fund for Families

When we look back on our time with Emma we don't focus on the medical equipment, the seizures, the medications, or the feedings.  We remember all the memories we made with her.  We were determined to give Emma as normal of a life as possible and tried to do as much with her as we could.  From trips to the zoo, baseball games, days at the beach, apple picking, going to the top of the Empire State Building, and having tea at the Plaza with Eloise, we have so many things to choose from and numerous pictures to remind us of the good moments.

Emma’s Fund for Families is established to enable families to have memory making opportunities in honor of Emma.  The purpose of the fund is to allow affected families to apply for grants to use towards enrichment activities.  It can be used any way a family feels would be beneficial for creating their memories, such as trips to the zoo, photo shoots, tickets to an event, an overnight in a hotel with a pool, etc.  Anything that your family feels would provide a break from the routine and some fun times with your child is eligible.  We hope all families have the opportunity to make amazing memories. 

Please select your donation preference:

Donate by Credit Card or
Bank Transfer

Donate through PayPal

Donations by Mail or Phone:
(617) 277-4463
Checks payable to NTSAD
2001 Beacon Street, Suite 204
Boston, MA 02135

To set up annual recurring donations, please contact us at (617) 277-4463.

Download an application here.

  

Emma with Daddy at a Mets game

Resting on the beach

 

Emma at Frozen on Ice

 

Apple Picking 

Relaxing poolside  

 


 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Additional Giving

Mail or Phone Donations

(617) 277-4463
Checks payable to NTSAD
2001 Beacon Street, Suite 204
Boston, MA 02135.

Matching Gifts

Ask your employer about a matching gift program to double the impact. Federal employees may use NTSAD's CFC #11528

A Gift of Stock

It is easy for NTSAD to facilitate a gift of stock. Contact Patrick Woods, Director of Development (617) 277-4463.

Estate Gifts

Invest in NTSAD's mission through your estate planning. Contact Patrick Woods, Director of Development (617) 277-4463.

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