Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases

2019 Imagine & Believe

Wednesday, October 30, 2019

6-9 pm
Royal Sonesta Hotel 
40 Edwin Land Blvd
Cambridge, MA
Dinner | Auction | Program

Join our generous sponsors and attendees here to support NTSAD. 

For 62 years, NTSAD has been bringing together leaders in the rare disease community to share, learn, network, and collaborate with families, researchers, clinicians and friends. NTSAD’s annual Imagine & Believe is a vital part of this effort.

Through Imagine & Believe we:

  • Connect affected families with leaders in research, biotech, medicine, and clinical pursuits with a goal of learning from the past, discussing the state of rare diseases, and building partnerships for the future
  • Raise money to fund research, promote and steward these partnerships, and serve our families.
  • Bring toghether families, Board members, and attendees who are very well networked in the Boston biotech community, especially in rare diseases. Among them are industry partners, researchers, and clinicians. 

Join us in honoring Cynthia Tifft, M.D., Ph.D., Deputy Clinical Director of the National Human Genome Research  Institute/NIH. A trusted partner and advisor to NTSAD since 1998, Dr. Cynthia Tifft is an accomplished clinician  and scientist, and an extraordinary advocate for the  rare disease community.  Always prioritizing the  children and adults for whom she cares, Dr. Tifft has  led an almost 20-year long natural history study for  storage disorders laying essential groundwork for  clinical trials. Dr. Tifft is the Principal Investigator for  a newly opened GM1 gangliosidosis gene therapy  clinical trial, a career milestone.

Silent Auction

Take a peek at our Silent Auction Wish List offerings here to purchase and contribute an item!

Sponsorship

Join our generous sponsors here to support NTSAD.


 

How to Support

To sponsor Imagine & Believe 2019, view tickets, and see ad prices,
please follow this link.

Or Download the form here.

For more information or questions, please email Patrick Woods, Director of Development, here.

2019 Sponsors

Believe Sponsor

Axovant Gene Therapies

Hope Sponsors

Aspa Therapeutics

Cydan

Inspiration Sponsors

Amicus Therapeutics

Audentes

Gerry Cox, MD, PhD and Cindy Lemere, PhD

Jayne and Bruce Gershkowitz

Joan and Tim Keutzer

Lysogene

Passage Bio

UMass Medical School

Determination Sponsors

Acom Healthcare

Adelman Associates

Azafaros

bluebird bio

Centogene

Ruth and Ed Feldman

Idorsia

Staci Kallish and Chris Beer

Blyth and Charles Lord

Orchard Therapeutics

Retrophin

Retrotope

Speak Life Science

UniQure

 

 

 

 

 

 

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