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Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases

2017 Annual Family Conference

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NTSAD 39th Annual Family Conference

Thursday, March 30 to
Sunday, April 2, 2017

Dallas/Addison Marriott
Quorum by the Galleria
14901 Dallas Pkwy
Dallas, Texas 75254

 

Join us for three full days of support, empowerment and knowledge. You will meet others who understand and the professionals who are committed to being there for all of us. We hope you can make it! 

You can order your NTSAD 2017 Conference t-shirt here also commemorating NTSAD's 60th Anniversary!

Download the conference brochure here.

Registration

(includes all meals from Thursday lunch to Sunday brunch)		           

Hotel Reservation

Deadline: March 8, 2017

Adult: $315 (ages 13 and up)
Child: $150 (ages 3-12)
Affected Children are free

Click here to register for the conference.

 

  

Hotel Rate: $162 (including hotel tax)

Click here to make a hotel reservation.

 

 

Getting to Dallas

  

Important Deadlines

Airports
Dallas Fort Worth Airport - 20 miles to hotel 
Dallas Love Field – 10 miles to hotel 
 
Transportation Options 
Super Shuttle, $19/person from both airports (1-800-258-3826) 
Taxi, $35 from DLF and $50 from DFW 
 
Complementary self-parking on site for NTSAD guests 
Daily Valet, $15 
Overnight Valet, $22 

 

 

Travel Resources

Mercy Medical Airlift
mercymedical.org

National Patient Travel Center
patienttravel.org

Miracle Flights
miracleflights.org

  

Helping Hand Grant Applications Due
January 1, 2017 (If you've missed the deadline, contact our Conference Coordinator This email address is being protected from spambots. You need JavaScript enabled to view it., or Director of Family Services This email address is being protected from spambots. You need JavaScript enabled to view it..)

Conference Registrations Due
March 8, 2017

Hotel Reservations Due
March 8, 2017

 

 

 

 

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Register Here

Adult: $315 (ages 13 and up)
Child: $150 (ages 3-12)
Affected Children are free

Click here to register for the conference.

Reasons to Go

“For our family attending the conference is like coming ‘home’ to a family that understand and where you don’t have to explain yourself…you just get unconditional love and acceptance.”

“Attending conference changed everything for me. It’s an incredible feeling to bond with other families who understand what you are going through and are willing to hold your hand through it all..... it’s hard to sum it up.  The conference truly changed my life!”

“The support and guidance we received in the meetings was invaluable in helping us to stay on our feet, band together as a family and to continue to support her brother. There was so much comfort in knowing we were with other parents who completely understand the way we are feeling.”

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