Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

2018 Annual Family Conference

NTSAD 40th Annual Family Conference

Thursday, April 12 to
Sunday, April 15, 2018

Hyatt Regency Riverfront
225 E. Coastline Dr.
Jacksonville, FL 32202

Join us for three full days of support, empowerment and knowledge. You will meet others who understand and the professionals who are committed to being there for all of us. We hope you can make it! 

Browse the Virtual Annual Family Conference Brochure here.

Gifts to support the conference experience can be made here.


(includes all meals from Thursday lunch to Sunday brunch)

Hotel Reservation

Deadline: March 8, 2018

Adult: $320 (ages 13 and up)
Child: $150 (ages 3-12)
Affected Children are free

Click here to register for the conference.



Hotel Rate: $182 (including hotel tax)

Click here to make a hotel reservation.



Getting to Jacksonville


Important Deadlines

Jacksonville International Airport, 15.1 miles
Transportation Options
Complimentary shuttle within a 3 mile radius of the hotel

Checker Yellow Cab of Jacksonville
(904) 345-3333

Super Shuttle
On Site discounted parking rate of $15/vehicle/night


Travel Resources

Mercy Medical Airlift

National Patient Travel Center

Miracle Flights


Helping Hand Grant Applications Due
January 1, 2018 (If you've missed the deadline, contact our Conference Coordinator This email address is being protected from spambots. You need JavaScript enabled to view it., or Director of Family Services This email address is being protected from spambots. You need JavaScript enabled to view it..)

Conference Registrations Due
March 21, 2018

Hotel Reservations Due
March 21, 2018





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Reasons to Go

“For our family attending the conference is like coming ‘home’ to a family that understand and where you don’t have to explain yourself…you just get unconditional love and acceptance.”

“Attending conference changed everything for me. It’s an incredible feeling to bond with other families who understand what you are going through and are willing to hold your hand through it all..... it’s hard to sum it up.  The conference truly changed my life!”

“The support and guidance we received in the meetings was invaluable in helping us to stay on our feet, band together as a family and to continue to support her brother. There was so much comfort in knowing we were with other parents who completely understand the way we are feeling.”