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Tay-Sachs, Canavan, GM1 and Sandhoff diseases

Support for Families

If your family is affected by a rare genetic disorder, you are not alone. NTSAD is here to help with resources that can help from the day of diagnosis through day-to-day care, tough end-of-life decisions and beyond. With an incredible network of families ready to offer advice and share their experiences to an unforgettable annual family conference, NTSAD is there for families and individuals coping with these diseases.
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  • Access resources while you care for your child while coping with a diagnosis of Canavan, GM1 Gangliosidosis, Sandhoff and Tay-Sachs (GM2 Gangliosidosis).
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  • Access the resources and the information you may need while coping with a diagnosis of Late Onset GM1, Sandhoff or Tay-Sachs (GM2). You are not alone.
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  • We know you may have many questions and want to know all the answers all at once. Here are a few resources that may help you tackle them one by one. Remember - we're here to help.
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  • The Annual Family Conference is an invaluable experience for rare families and the cornerstone of NTSAD’s Family Support Services. All families are welcome. Canavan, GM1, Sandhoff and Tay-Sachs.
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  • Ian and Marie Auerbach established Benton's Family Assistance Fund within NTSAD to honor their son, Benton, who passed away from Tay-Sachs in January, 2012, at the age of 3. They started this fund to provide financial assistance to families and affected individuals to purchase items
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  • Having a brother or sister with Tay-Sachs, Sandhoff, GM1, Canavan or related disease can be hard, confusing and overwhelming. This section is just for you! It will help you understand the disease, connect with other siblings and learn about ways to play and interact with
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