Other Equipment for
Tay-Sachs, Sandhoff, GM1, Canavan and related diseases
A pulse oximeter is a convenient and noninvasive way to monitor your child's oxygen levels. It simply sits on your child's figure and displays oxygen levels on a monitor. Many also display heart rate. There are three types of pulse oximeter: non-portable that plug into the wall like the ones used in the hospital, hand-held and finger-tip both of which are portable and battery-operated.
An apnea monitor is a device that measures how well your child breathes while sleeping. It checks for apnea, a period when you stop breathing for 5 to 20 seconds while you sleep. The device also measures air flow, chest movements, heart rate, and oxygen in your blood.
Feeding Pump (if using g-tube)
A feeding pump is a small machine, calibrated for accuracy, designed to deliver formula and/or other liquid at a set rate. Generally used when children do not tolerate bolus (all at once through a syringe) feeds.