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Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases

News Feeds

A collection of news from around the Internet

News Feed: Tay-Sachs

Latest Tay Sachs Disease News and Research

News Feed: Sandhoff

Latest Sandhoff Disease News and Research

News Feed: Canavan Disease

Latest Canavan Disease (Leukodystrophies) News and Research
  • Human stem cells show promise against fatal children's diseases
    Scientists have used human stem cells to dramatically improve the condition of mice with a neurological condition similar to a set of diseases in children that are invariably fatal, according to an article in the June issue of the journal Cell Stem Cell.

News Feed: DNA Science

Genetics in context
  • A New View of Diabetes?
    It’s hard to change entrenched ideas in science. Protein is the genetic material. Genes are continuous and immobile. The genome consists of 120,000 genes; no, 80,000; no, 60,000; no, 20,325. What we know about the
  • Blinded By Stem Cells
    The small wavy shimmers and fuzzy areas in the 78-year-old’s eyes had grown slowly, leading to a diagnosis of age-related macular degeneration (AMD), which affects more than 10 million Americans. She had the more common
  • Saving GINA: Is Genetic Privacy Imperiled?
    A bill that passed its first hurdle yesterday in Congress threatens to take away genetic privacy protections put in place with the Genetic Information Nondiscrimination Act (GINA) of 2008. H.R.1313, the “Preserving Employee Wellness Programs Act,” might

News Feed: Gangliosidosis-1

Latest Gangliosidosis News and Research
  • New gene therapy shows promising results for treating neurodegenerative disorders
    A new gene therapy approach designed to replace the enzyme that is deficient in patients with the inherited neurodegenerative disorders Tay-Sachs and Sandhoff diseases successfully delivered the therapeutic gene to the brains of treated mice, restored enzyme function, and extended survival by about 2.5-fold.
  • Researchers devise new genetic technique for IVF embryos
    Researchers at the Johns Hopkins University School of Medicine have devised a new technique, which helps couples that are affected by or are carriers of genetic diseases have in vitro fertilized babies free of both the disease in question and other chromosomal abnormalities. The results were reported in the April issue of Fertility and Sterility.
  • New genetic testing technology for IVG embryos
    Researchers at the Johns Hopkins University School of Medicine have devised a new technique, which helps couples that are affected by or are carriers of genetic diseases have in vitro fertilized babies free of both the disease in question and other chromosomal abnormalities. The results were reported in the April issue of Fertility and Sterility.

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