The Impact of COVID-19 is Rapidly Evolving. We continue to monitor the news, the restrictions and the cancellations around the country, and we’re working with NTSAD’s Board leadership about its impact on our community.
We hope that you and all our friends, partners and supporters, are managing as best as you can as we live through an unprecedented time during the coronavirus outbreak. NTSAD's office in the Boston area is closed in accordance with the governor's March 24th declaration that all non-essential offices close. However, we want to assure you that the NTSAD staff continues to work remotely to support families and to sustain our important mission.
Throughout this time of uncertainty, we at NTSAD are in touch with many of you, our families, researchers, clinicians, partner organizations and industry members to keep you apprised of the latest news as it relates to the coronavirus and its impact on the rare disease community.
If you have questions or concerns, please email NTSAD at This email address is being protected from spambots. You need JavaScript enabled to view it..
Follow the latest news on the Centers for Disease Control (CDC) website here or the World Health Organization (WHO) here to keep yourself and your family healthy.
Advocacy