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Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases

Sponsor Hope

The Annual Family Conference is a highlight of the year for NTSAD’s families.  

The 2018 Annual Family Conference will be held at the Hyatt Regency Jacksonville Riverfront from Thursday, April 12 to Sunday, April 15, 2018.  A gift of sponsorship is a wonderful way to support the conference experience, the families, their children and the adults affected by these rare genetic diseases. All sponsorships will receive recognition and a token of our thanks after the conference.

Ways to Sponsor
the Annual Family Conference

 

cure
Support of $5,000+ includes:
Highlighted listing in conference mobile app
Full-page ad in conference brochure
Recognition on NTSAD website
Display table (if vendor sponsor)
A special token of thanks post-conference

hope
Support of $1,000+ includes:
Full-page ad in conference brochure
Recognition on NTSAD website
Display table (if vendor sponsor)
A special token of thanks post-conference

inspiration
Support of $500+ includes:
Full-page ad in conference brochure
Recognition on NTSAD website

determination
Support of $250+ includes:
Half-page message in conference brochure

 

 

 

 

 

 

The Ways Your Gifts Help at the Conference

Caring for the Children
Camp Snuggle for Affected Children ($10,000)
Camp Sunshine for Healthy Siblings ($6,000)
Healthy Sibling Youth Retreat & Workshops ($2,000)
Symptom Management Session ($1,000)

Caring for the Family
Late Onset Conference Program ($1,000)
Late Onset “Team Building” Outing ($2,000)
Family Lounge ($3,000)
Saturday Night Celebration Dinner ($10,000)
Support Sessions for Parents & Grandparents ($1,000)
Commemoration Ceremony ($500)
Soulumination, Bereaved &
Late Onset Photography Sessions ($5,000)

It’s All About Research
Research Update Session ($5,000)
Meet & Greet Reception ($3,000)
Research Luncheon ($5,000)
Filming Research Presentations ($2,500)

It’s in the Details
Welcome Bags ($500)
Conference “Stay Connected” Programs ($500)
Transportation between hotel & airport ($1,000)
Conference Mobile App ($1,000)

 

Make your sponsorship gift here and please note what you would like to support. Please contact Patrick Woods, Director of Development, at This email address is being protected from spambots. You need JavaScript enabled to view it. or (617) 277-4463 if you have questions.
Donate Today

   

 

Annual Family Conferences

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Sponsor Hope

Donate Today

Download form here and send to:

NTSAD
2001 Beacon Street, #204
Boston, MA 02135
or email to
Patrick Woods at patrick@ntsad.org

Why Sponsor?

“For our family attending the conference is like coming ‘home’ to a family that understand and where you don’t have to explain yourself…you just get unconditional love and acceptance.”

“Attending conference changed everything for me. It’s an incredible feeling to bond with other families who understand what you are going through and are willing to hold your hand through it all..... it’s hard to sum it up.  The conference truly changed my life!”

“The support and guidance we received in the meetings was invaluable in helping us to stay on our feet, band together as a family and to continue to support her brother. There was so much comfort in knowing we were with other parents who completely understand the way we are feeling.”

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