NTSAD Research Library

Explore Scientific Literature and Other Resources on Tay-Sachs, Canavan, GM1 gangliosidosis, and Sandhoff Diseases.

Over the years, National Tay-Sachs & Allied Diseases (NTSAD) has curated a collection of scientific literature and other resources on Tay-Sachs, Canavan, GM1 gangliosidosis, and Sandhoff diseases.

We’ll continue to add to this library so you can stay up to date on developments in the field.

You can search the NTSAD research library for:

  • Scientific articles and posters
  • NTSAD newsletters
  • Advocacy information and toolkits
  • Care guides
  • Infographics
  • Position statements

Library

Title
Grief Reaction Check-in
1 file(s) 939 downloads
Family Support Resources October 8, 2020
Living with Late-Onset Guide – Tay-Sachs, Sandhoff and GM1
1 file(s) 269 downloads
Family Support Resources October 2, 2020
Care Tips – G-Tubes from A to Z
1 file(s) 276 downloads
Family Support Resources December 1, 2017
Care Tips – Motion and Massage
1 file(s) 335 downloads
Family Support Resources October 25, 2017
Philosophy of Care Plan – template
1 file(s) 954 downloads
Family Support Resources January 24, 2017

    Submit Your Research

    If you have an article or paper you’d like to submit to the research library, please email Valerie Greger (vgreger@ntsad.org), our Research Director.

    Need Help?

    If you or a family member is affected by a rare disease and you’d like help reviewing scientific literature, please contact our Family Support Team by emailing Diana Jussila (diana@ntsad.org), Director of Family Services, or Becky Benson (becky@ntsad.org), Family Services Manager.