NTSAD Research Library
Explore Scientific Literature and Other Resources on Tay-Sachs, Canavan, GM1 gangliosidosis, and Sandhoff Diseases.
Over the years, National Tay-Sachs & Allied Diseases (NTSAD) has curated a collection of scientific literature and other resources on Tay-Sachs, Canavan, GM1 gangliosidosis, and Sandhoff diseases.
We’ll continue to add to this library so you can stay up to date on developments in the field.
You can search the NTSAD research library for:
- Scientific articles and posters
- NTSAD newsletters
- Advocacy information and toolkits
- Care guides
- Infographics
- Position statements
Library
| Title | Categories | Publish Date | Download |
|---|---|---|---|
|
Grief Reaction Check-in 1 file(s) 1411 downloads |
Family Support Resources | October 8, 2020 | Download |
|
Living with Late-Onset Guide - Tay-Sachs, Sandhoff and GM1 1 file(s) 427 downloads |
Family Support Resources | October 2, 2020 | Download |
|
Care Tips - G-Tubes from A to Z 1 file(s) 468 downloads |
Family Support Resources | December 1, 2017 | Download |
|
Care Tips - Motion and Massage 1 file(s) 521 downloads |
Family Support Resources | October 25, 2017 | Download |
|
Philosophy of Care Plan - template 1 file(s) 1450 downloads |
Family Support Resources | January 24, 2017 | Download |
Submit Your Research
If you have an article or paper you’d like to submit to the research library, please email Valerie Greger (vgreger@ntsad.org), our Research Director.
Need Help?
If you or a family member is affected by a rare disease and you’d like help reviewing scientific literature, please contact our Family Support Team by emailing Diana Jussila (diana@ntsad.org), Director of Family Services, or Becky Benson (becky@ntsad.org), Family Support and Engagement Manager.
