NTSAD Research Library

Explore Scientific Literature and Other Resources on Tay-Sachs, Canavan, GM1 gangliosidosis, and Sandhoff Diseases.

Over the years, National Tay-Sachs & Allied Diseases (NTSAD) has curated a collection of scientific literature and other resources on Tay-Sachs, Canavan, GM1 gangliosidosis, and Sandhoff diseases.

We’ll continue to add to this library so you can stay up to date on developments in the field.

You can search the NTSAD research library for:

  • Scientific articles and posters
  • NTSAD newsletters
  • Advocacy information and toolkits
  • Care guides
  • Infographics
  • Position statements

Library

Title
GM1 Gangliosidosis-A Mini-Review.
1 file(s) 663 downloads 		GM1 Gangliosidosis September 23, 2021 Download
GM1 Gangliosidosis: Mechanisms and Management.
1 file(s) 1100 downloads 		GM1 Gangliosidosis April 9, 2021 Download
The natural history of Type 1 infantile GM1 gangliosidosis: A literature-based meta-analysis.
1 file(s) 589 downloads 		GM1 Gangliosidosis December 30, 2019 Download

    Submit Your Research

    If you have an article or paper you’d like to submit to the research library, please email Valerie Greger (vgreger@ntsad.org), our Research Director.

    Need Help?

    If you or a family member is affected by a rare disease and you’d like help reviewing scientific literature, please contact our Family Support Team by emailing Diana Jussila (diana@ntsad.org), Director of Family Services, or Becky Benson (becky@ntsad.org), Family Services Manager.