Partnering with Industry
Collaborating with Biotechnology and Biopharmaceutical Companies in Drug Development
Leveraging more than 65 years of expertise as a leading patient advocacy organization, NTSAD is an experienced partner in collaborating with biotechnology and biopharmaceutical companies in drug development programs for Tay-Sachs, Canavan, GM1, and Sandhoff diseases. NTSAD brings the voices of affected individuals and families to conversations with companies focused on early-stage to preclinical and clinical trials as potential therapeutic programs are developed. We share the same mission of identifying effective therapies and treatments for the our rare, global community.
There are several ways NTSAD collaborates with industry partners, including:
Scheduled monthly touchpoints, updates, and meetings
Access to affected individuals and families for focus groups and interviews
Patient Advisory Committees/Councils
Dissemination of relevant industry communications to the patient community
Participation in NTSAD’s Annual Family Conference and Research and Industry presentations
Assistance in creation of educational materials about drug development, natural history studies, and clinical trials
Community-building opportunities for company and employees through events such as NTSAD’s annual Day of Hope
Awareness and recognition via sponsorship and support of NTSAD’s Annual Family Conference, our Family Services programs and materials, and NTSAD’s annual, signature fundraising event – Imagine & Believe
Read more about NTSAD’s efforts in advancing basic and translational research, clinical development, early diagnosis, and newborn screening.