Virtual Biorepository

An important part of NTSAD’s mission is to forge collaboration among researchers, clinicians, and industry to drive research toward effective treatments for Tay-Sachs, Canavan, GM1, and Sandhoff diseases. To that goal, NTSAD has created a virtual biorepository to facilitate the sharing of research samples including cell lines and patient samples among researchers and clinicians.

NTSAD will serve as a connection point between researchers looking to locate and share samples. We will not physically collect or house biological samples.

Our inventory of samples can be searched by sample type and/or a specific disease.

To request a sample, please fill out the Sample Request Form. NTSAD’s research team will connect you with the researcher who has the requested sample and arrange a sample transfer to you. To ensure this process works for everyone, following the transfer of samples we will ask for your feedback via a survey helping us to improve this vital resource.