{"id":2006,"date":"2022-12-01T19:50:59","date_gmt":"2022-12-01T19:50:59","guid":{"rendered":"https:\/\/ntsad.org\/?page_id=2006"},"modified":"2023-09-13T18:10:02","modified_gmt":"2023-09-13T18:10:02","slug":"get-involved","status":"publish","type":"page","link":"https:\/\/ntsad.org\/about-ntsad\/get-involved\/","title":{"rendered":"Get Involved"},"content":{"rendered":"

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Get Involved<\/h1><\/div>

Awareness, Prevention, and Fundraising for a Brighter Future<\/p>\n<\/div><\/div><\/div><\/div><\/div>

Raise Awareness<\/h2><\/div>

There is always an opportunity to raise awareness about these diseases, and NTSAD has the tools to help you.<\/p>\n<\/div>

Share NTSAD’s “Be Rare Aware” Disease Infographics<\/h3><\/div>

Educate friends and family by sharing NTSAD’s “Be Rare Aware” infographics either on social media or by handing out printed copies. <\/p>\n<\/div>

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Download<\/span><\/a><\/div><\/div><\/div>
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Download<\/span><\/a><\/div><\/div><\/div>
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Download<\/span><\/a><\/div><\/div><\/div>
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Download<\/span><\/a><\/div><\/div><\/div><\/div>

Talk to a Local Group<\/h3><\/div>

Many houses of worship, schools, and even local hospitals would work with you to organize an educational forum. NTSAD can connect you to resources to help you with presenting critical information to attendees. <\/p>\n<\/div>

Connect with Your Local Media<\/h3><\/div>

Telling your own personal story can be effective in raising awareness. Contact Susan, NTSAD’s Director of Development and Communications (skeliher@ntsad.org<\/u><\/b><\/a>), for assistance with media contacts or raising awareness. <\/p>\n<\/div><\/div><\/div>

Other Ways to Get Involved<\/h2><\/div>
<\/div><\/div>

Donate!<\/h3><\/div>

Make a gift online, or by phone, check, or credit card. Make a gift in honor of \u2013 or in memory of \u2013 a loved one.<\/p>\n<\/div>

Learn More<\/span><\/a><\/div>

Events<\/h3><\/div>

Join the cause by attending or organizing an event to help raise awareness and funds.<\/p>\n<\/div>

Learn More<\/span><\/a><\/div>

Advocate<\/h3><\/div>

Follow how change can be made by supporting legislation that affects NTSAD and the rare genetic disease community.<\/p>\n<\/div>

Learn More<\/span><\/a><\/div><\/div><\/div><\/div><\/div>

Volunteer<\/h2><\/div>

NTSAD relies on volunteers to help spread the word and raise awareness.<\/p>\n

With the exception of our small staff, everyone involved with NTSAD, including its Board of Directors and Committee members, generously give their time, energy, and talents to NTSAD for free so we can spend less on administrative costs and more on raising awareness and finding a cure.<\/p>\n<\/div>

Ways You Can Help!<\/h3><\/div>

Join one of NTSAD’s committees and have a voice in what the organization does next.<\/p>\n

    \n
  • Communications Committee
    <\/b>Help develop, improve, and refine outreach materials and external communication efforts to support families and promote the mission and work of NTSAD.<\/li>\n
  • Development Committee<\/b>
    Share your ideas on how NTSAD can succeed in raising funds for research, family support, and the overall health of the organization.<\/li>\n
  • Family Services Committee<\/b>
    Be there for families and individuals when they come to NTSAD for guidance and support.<\/li>\n
  • Legislative Advocacy Committee<\/b>
    Join your voice with ours to advocate for rare disease legislative priorities at the local, regional, state, and federal levels.<\/li>\n
  • Research Initiative Committee<\/b>
    Work with a stellar group of members and get involved with the exciting progress on the research front.<\/li>\n<\/ul>\n<\/div><\/div><\/div>
    <\/span><\/div>

    Come join our growing team of passionate volunteers!<\/b><\/p>\n

    Volunteer your time and expertise. Contact the office at (617) 277-4463.<\/span><\/p>\n<\/div><\/div><\/div><\/div><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":288,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"100-width.php","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"yoast_head":"\nGet Involved - NTSAD<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ntsad.org\/about-ntsad\/get-involved\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Get Involved - NTSAD\" \/>\n<meta property=\"og:url\" content=\"https:\/\/ntsad.org\/about-ntsad\/get-involved\/\" \/>\n<meta property=\"og:site_name\" content=\"NTSAD\" \/>\n<meta property=\"article:publisher\" content=\"http:\/\/www.facebook.com\/pages\/National-Tay-Sachs-Allied-Diseases-Association-Inc-NTSAD\/102990173079421\" \/>\n<meta property=\"article:modified_time\" content=\"2023-09-13T18:10:02+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:site\" content=\"@NTSAD\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"1 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/ntsad.org\/about-ntsad\/get-involved\/\",\"url\":\"https:\/\/ntsad.org\/about-ntsad\/get-involved\/\",\"name\":\"Get Involved - 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