{"id":3150,"date":"2023-01-22T17:25:20","date_gmt":"2023-01-22T17:25:20","guid":{"rendered":"https:\/\/ntsad.org\/?page_id=3150"},"modified":"2023-01-25T13:08:14","modified_gmt":"2023-01-25T13:08:14","slug":"imagine-believe-2021","status":"publish","type":"page","link":"https:\/\/ntsad.org\/events\/imagine-believe\/imagine-believe-2021\/","title":{"rendered":"Imagine &#038; Believe &#8211; 2021"},"content":{"rendered":"<p><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container has-pattern-background has-mask-background fusion-parallax-none hundred-percent-fullwidth hundred-percent-height hundred-percent-height-center-content non-hundred-percent-height-scrolling\" style=\"--awb-background-position:center top;--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-padding-top:50px;--awb-padding-bottom:0px;--awb-background-image:url(&quot;https:\/\/ntsad.org\/wp-content\/uploads\/2022\/07\/ImagineBelieve-BG.png&quot;);--awb-background-size:cover;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-align-content-flex-end fusion-flex-content-wrap\" style=\"width:104% !important;max-width:104% !important;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_3_5 3_5 fusion-flex-column fusion-flex-align-self-flex-end fusion-animated\" style=\"--awb-padding-top:25px;--awb-padding-right:25px;--awb-padding-bottom:25px;--awb-padding-left:40px;--awb-overflow:hidden;--awb-bg-color:rgba(65,0,68,0.6);--awb-bg-color-hover:rgba(65,0,68,0.6);--awb-bg-size:cover;--awb-border-radius:6px 6px 6px 6px;--awb-width-large:60%;--awb-margin-top-large:0px;--awb-spacing-right-large:13.44%;--awb-margin-bottom-large:65px;--awb-spacing-left-large:8%;--awb-width-medium:60%;--awb-order-medium:0;--awb-spacing-right-medium:13.44%;--awb-spacing-left-medium:8%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-animationType=\"fadeInLeft\" data-animationDuration=\"1.3\" data-animationOffset=\"top-into-view\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-title title fusion-title-1 fusion-sep-none fusion-title-text fusion-title-size-one\" style=\"--awb-text-color:var(--awb-color1);--awb-margin-top:0px;--awb-margin-bottom:0px;\"><h1 class=\"fusion-title-heading title-heading-left\" style=\"font-family:&quot;Lato&quot;;font-style:normal;font-weight:900;margin:0;\">Imagine &amp; Believe<\/h1><\/div><div class=\"fusion-text fusion-text-1\" style=\"--awb-font-size:24px;--awb-text-color:#ffffff;--awb-margin-top:0px;--awb-text-font-family:&quot;Lato&quot;;--awb-text-font-style:normal;--awb-text-font-weight:400;\"><p>Connection, Collaboration, and Community<\/p>\n<\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-2 fusion-flex-container has-pattern-background has-mask-background nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-padding-top:81px;--awb-padding-right:5%;--awb-padding-bottom:76px;--awb-padding-left:5%;--awb-background-color:rgba(100,47,108,0.15);--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:2496px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-1 fusion_builder_column_1_3 1_3 fusion-flex-column fusion-flex-align-self-stretch\" style=\"--awb-bg-size:cover;--awb-width-large:33.333333333333%;--awb-margin-top-large:0px;--awb-spacing-right-large:5.76%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:5.76%;--awb-width-medium:50%;--awb-order-medium:0;--awb-spacing-right-medium:3.84%;--awb-spacing-left-medium:3.84%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-video fusion-youtube\" style=\"--awb-max-width:600px;--awb-max-height:360px;\"><div class=\"video-shortcode\"><div class=\"fluid-width-video-wrapper\" style=\"padding-top:60%;\" ><iframe title=\"YouTube video player 1\" src=\"https:\/\/www.youtube.com\/embed\/LtBtlwOcxSE?wmode=transparent&autoplay=0&enablejsapi=1\" width=\"600\" height=\"360\" allowfullscreen allow=\"autoplay; fullscreen\"><\/iframe><\/div><\/div><\/div><div class=\"fusion-title title fusion-title-2 fusion-sep-none fusion-title-text fusion-title-size-three\" style=\"--awb-font-size:25px;\"><h3 class=\"fusion-title-heading title-heading-left\" style=\"margin:0;font-size:1em;\">Full Event Video<\/h3><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-2 fusion_builder_column_1_3 1_3 fusion-flex-column fusion-flex-align-self-stretch\" style=\"--awb-bg-size:cover;--awb-width-large:33.333333333333%;--awb-margin-top-large:0px;--awb-spacing-right-large:5.76%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:5.76%;--awb-width-medium:50%;--awb-order-medium:0;--awb-spacing-right-medium:3.84%;--awb-spacing-left-medium:3.84%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-video fusion-youtube\" style=\"--awb-max-width:600px;--awb-max-height:360px;\"><div class=\"video-shortcode\"><div class=\"fluid-width-video-wrapper\" style=\"padding-top:60%;\" ><iframe title=\"YouTube video player 2\" src=\"https:\/\/www.youtube.com\/embed\/Ba0fKGjmdy4?wmode=transparent&autoplay=0&enablejsapi=1\" width=\"600\" height=\"360\" allowfullscreen allow=\"autoplay; fullscreen\"><\/iframe><\/div><\/div><\/div><div class=\"fusion-title title fusion-title-3 fusion-sep-none fusion-title-text fusion-title-size-three\" style=\"--awb-font-size:25px;\"><h3 class=\"fusion-title-heading title-heading-left\" style=\"margin:0;font-size:1em;\">Family Video<\/h3><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-3 fusion_builder_column_1_3 1_3 fusion-flex-column fusion-flex-align-self-stretch\" style=\"--awb-bg-size:cover;--awb-width-large:33.333333333333%;--awb-margin-top-large:0px;--awb-spacing-right-large:5.76%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:5.76%;--awb-width-medium:50%;--awb-order-medium:0;--awb-spacing-right-medium:3.84%;--awb-spacing-left-medium:3.84%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-video fusion-youtube\" style=\"--awb-max-width:600px;--awb-max-height:360px;\"><div class=\"video-shortcode\"><div class=\"fluid-width-video-wrapper\" style=\"padding-top:60%;\" ><iframe title=\"YouTube video player 3\" src=\"https:\/\/www.youtube.com\/embed\/mGeOvqObxcI?wmode=transparent&autoplay=0&enablejsapi=1\" width=\"600\" height=\"360\" allowfullscreen allow=\"autoplay; fullscreen\"><\/iframe><\/div><\/div><\/div><div class=\"fusion-title title fusion-title-4 fusion-sep-none fusion-title-text fusion-title-size-three\" style=\"--awb-font-size:25px;\"><h3 class=\"fusion-title-heading title-heading-left\" style=\"margin:0;font-size:1em;\">Tribute to Former Executive Director Sue Kahn<\/h3><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-4 fusion_builder_column_3_5 3_5 fusion-flex-column fusion-flex-align-self-stretch\" style=\"--awb-overflow:visible;--awb-bg-color:rgba(255,255,255,0);--awb-bg-color-hover:rgba(255,255,255,0);--awb-bg-size:cover;--awb-border-radius:6px 6px 6px 6px;--awb-width-large:60%;--awb-margin-top-large:0px;--awb-spacing-right-large:0%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:3.2%;--awb-width-medium:60%;--awb-order-medium:0;--awb-spacing-right-medium:0%;--awb-spacing-left-medium:3.2%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-builder-row fusion-builder-row-inner fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"width:104% !important;max-width:104% !important;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column_inner fusion-builder-nested-column-0 fusion_builder_column_inner_1_1 1_1 fusion-flex-column\" style=\"--awb-padding-top:25px;--awb-padding-right:25px;--awb-padding-bottom:5px;--awb-padding-left:25px;--awb-overflow:hidden;--awb-bg-color:var(--awb-color1);--awb-bg-color-hover:var(--awb-color1);--awb-bg-size:cover;--awb-border-radius:6px 6px 6px 6px;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-2\"><p>Thank you for Imagining &amp; Believing with NTSAD. Because of you, we celebrate our hard work, which has led to NINE clinical trials\u2014one completed, and eight active trials\u2014for Tay-Sachs, Canavan, GM1, and Sandhoff diseases.  NTSAD remains indebted to patients and their families, researchers, clinicians, industry, donors and rare allies for helping us to reach this monumental milestone.<\/p>\n<p>On October 28, 2021, more than 250 members of our Community gathered virtually raising $115,000 for NTSAD\u2019s Family Services. Thank you to our sponsors and supporters for making this possible.<\/p>\n<p>We also must acknowledge Myra Sack and Matt Goldstein, parents of Havi; Renny and Eric Drinks, parents of Shoshanna; Karen and Jeff Arbetter, parents of Jason and Josh; Dawn Mariano, parent of Vayle; and Jessica Lindqvist and Niclas Flysj\u00f6, parents of Hampus, Julia, and Isabella, for sharing their stories, the unwavering love for their children, and hope for the future. Thank you. Your efforts raised awareness, and more importantly, support families like yours.<\/p>\n<p>At the event, we honored Sue Kahn, NTSAD\u2019s Former Executive Director, who led the organization for the 14 years. In case you missed the event or the many tributes to Sue Kahn, you may watch it now. Thank you for your extraordinary leadership! We miss you, Sue. It\u2019s not too late to make a gift in honor of Sue!  <\/p>\n<p><b><u><a href=\"https:\/\/interland3.donorperfect.net\/weblink\/weblink.aspx?name=E94381&amp;id=52\" target=\"_blank\" rel=\"noopener noreferrer\">Make a gift in honor of Sue Kahn<\/a><\/u><\/b>.<\/p>\n<\/div><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-5 fusion_builder_column_2_5 2_5 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:40%;--awb-margin-top-large:0px;--awb-spacing-right-large:4.8%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:4.8%;--awb-width-medium:40%;--awb-order-medium:0;--awb-spacing-right-medium:4.8%;--awb-spacing-left-medium:4.8%;--awb-width-small:100%;--awb-order-small:0;--awb-margin-top-small:0px;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-image-element \" style=\"text-align:center;--awb-margin-top:40px;--awb-caption-title-font-family:var(--h2_typography-font-family);--awb-caption-title-font-weight:var(--h2_typography-font-weight);--awb-caption-title-font-style:var(--h2_typography-font-style);--awb-caption-title-size:var(--h2_typography-font-size);--awb-caption-title-transform:var(--h2_typography-text-transform);--awb-caption-title-line-height:var(--h2_typography-line-height);--awb-caption-title-letter-spacing:var(--h2_typography-letter-spacing);\"><span class=\" fusion-imageframe imageframe-none imageframe-1 hover-type-none\"><img decoding=\"async\" width=\"500\" height=\"142\" title=\"Imagine&#038;Believe-Logo\" src=\"https:\/\/ntsad.org\/wp-content\/uploads\/2022\/07\/ImagineBelieve-Logo.png\" alt class=\"img-responsive wp-image-153\" srcset=\"https:\/\/ntsad.org\/wp-content\/uploads\/2022\/07\/ImagineBelieve-Logo-200x57.png 200w, https:\/\/ntsad.org\/wp-content\/uploads\/2022\/07\/ImagineBelieve-Logo-400x114.png 400w, https:\/\/ntsad.org\/wp-content\/uploads\/2022\/07\/ImagineBelieve-Logo.png 500w\" sizes=\"(max-width: 416px) 100vw, 500px\" \/><\/span><\/div><div class=\"fusion-title title fusion-title-5 fusion-sep-none fusion-title-text fusion-title-size-four\"><h4 class=\"fusion-title-heading title-heading-left\" style=\"margin:0;\"><h1 style=\"text-align: center;\">2021 SPONSORS<\/h1><\/h4><\/div><div class=\"fusion-title title fusion-title-6 fusion-sep-none fusion-title-text fusion-title-size-four\"><h4 class=\"fusion-title-heading title-heading-left\" style=\"margin:0;\">Imagine Sponsor<\/h4><\/div><div class=\"fusion-text fusion-text-3\"><ul>\n<li><u><a href=\"https:\/\/aspatx.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">Aspa Therapeutics<\/a><\/u>, a BridgeBio Company<\/li>\n<\/ul>\n<\/div><div class=\"fusion-title title fusion-title-7 fusion-sep-none fusion-title-text fusion-title-size-four\"><h4 class=\"fusion-title-heading title-heading-left\" style=\"margin:0;\">Believe Sponsor<\/h4><\/div><div class=\"fusion-text fusion-text-4\"><ul>\n<li><u><a href=\"https:\/\/tayshagtx.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">Taysha Gene Therapies<\/a><\/u><\/li>\n<\/ul>\n<\/div><div class=\"fusion-title title fusion-title-8 fusion-sep-none fusion-title-text fusion-title-size-four\"><h4 class=\"fusion-title-heading title-heading-left\" style=\"margin:0;\">Hope Sponsors<\/h4><\/div><div class=\"fusion-text fusion-text-5\"><ul>\n<li>Gerald Cox MD, PhD*<\/li>\n<li><u><a href=\"https:\/\/mfrfoundation.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">Mathew Forbes Romer Foundation*<\/a><\/u><\/li>\n<li><a href=\"https:\/\/www.passagebio.com\/home\/default.aspx\" target=\"_blank\" rel=\"noopener noreferrer\"><u>Passage Bio<\/u><\/a><\/li>\n<li><u><a href=\"https:\/\/siogtx.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">Sio Gene Therapies<\/a><\/u><\/li>\n<\/ul>\n<\/div><div class=\"fusion-title title fusion-title-9 fusion-sep-none fusion-title-text fusion-title-size-four\"><h4 class=\"fusion-title-heading title-heading-left\" style=\"margin:0;\">Inspiration Sponsor<\/h4><\/div><div class=\"fusion-text fusion-text-6\"><div>\n<ul>\n<li><u><a href=\"https:\/\/www.amicusrx.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">Amicus Therapeutics<\/a><\/u><\/li>\n<li><u><a href=\"https:\/\/www.azafaros.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">Azafaros<\/a><\/u><\/li>\n<li><u><a href=\"https:\/\/blugenes.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">Blu Genes Foundation<\/a><\/u><\/li>\n<li><u><a href=\"https:\/\/www.canbridgepharma.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">CANBridge<\/a><\/u><\/li>\n<li>Michael Gladstone<\/li>\n<li>Myrtelle<\/li>\n<li><u><a href=\"https:\/\/www.sanofi.com\/en\" target=\"_blank\" rel=\"noopener noreferrer\">Sanofi Genzyme<\/a><\/u><\/li>\n<li><u><a href=\"https:\/\/www.umassmed.edu\/\" target=\"_blank\" rel=\"noopener noreferrer\">UMass Chan Medical School<\/a><\/u><\/li>\n<\/ul>\n<\/div>\n<ul>\n<\/ul>\n<\/div><div class=\"fusion-title title fusion-title-10 fusion-sep-none fusion-title-text fusion-title-size-four\"><h4 class=\"fusion-title-heading title-heading-left\" style=\"margin:0;\">Determination Sponsor<\/h4><\/div><div class=\"fusion-text fusion-text-7\"><ul>\n<li>Aaron&#8217;s Fund*<\/li>\n<li><u><a href=\"https:\/\/www.acomhealthcare.com\/en\/home\/\" target=\"_blank\" rel=\"noopener noreferrer\">Acom Healthcare*<\/a><\/u><\/li>\n<li><u><a href=\"http:\/\/www.adelmanassociates.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">Adelman Associates<\/a><\/u><\/li>\n<li><u><a href=\"https:\/\/www.allstripes.com\/?utm_source=google&amp;utm_medium=cpc&amp;utm_campaign=branded&amp;source=google&amp;medium=cpc&amp;gclid=CjwKCAjwvuGJBhB1EiwACU1AiUn1MGd1HQZSBMYzn8_rqMELAbIF3qroi15eAOw9-KPz1NtrHeBM5RoCclwQAvD_BwE\" target=\"_blank\" rel=\"noopener noreferrer\">AllStripes<\/a><\/u><\/li>\n<li>Larry Blumberg and Robin Lynn<\/li>\n<li><u><a href=\"https:\/\/www.gaintherapeutics.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">Gain Therapeutics<\/a><\/u><\/li>\n<li>Jamie Ring Advocacy Consulting, LLC*<\/li>\n<li>Staci Kallish* and Chris Beer<\/li>\n<li>Amy and Jonathan Katz*<\/li>\n<li>Joan and Tim Keutzer<\/li>\n<li><u><a href=\"https:\/\/www.logicbio.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">LogicBio Therapeutics<\/a><\/u><\/li>\n<li>Blyth and Charie Lord*<\/li>\n<li><u><a href=\"https:\/\/www.lysogene.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">Lysogene<\/a><\/u><\/li>\n<li><u><a href=\"https:\/\/www.propelcareers.com\/#\/\" target=\"_blank\" rel=\"noopener noreferrer\">Propel Careers*<\/a><\/u><\/li>\n<li>Curt Scribner<\/li>\n<li>Amy Speak*<\/li>\n<\/ul>\n<p><i><span data-fusion-font=\"true\" style=\"font-size: 17px;\">*NTSAD Board Member<\/span><\/i><\/p>\n<\/div><\/div><\/div><\/div><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":1097,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"100-width.php","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Imagine &amp; Believe - 2021 - NTSAD<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ntsad.org\/events\/imagine-believe\/imagine-believe-2021\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" 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