{"id":561,"date":"2022-08-05T04:24:08","date_gmt":"2022-08-05T04:24:08","guid":{"rendered":"https:\/\/ntsad.org\/?page_id=561"},"modified":"2024-03-27T20:41:52","modified_gmt":"2024-03-27T20:41:52","slug":"national-tay-sachs-allied-diseases-association-2","status":"publish","type":"page","link":"https:\/\/ntsad.org\/","title":{"rendered":"National Tay-Sachs &#038; Allied Diseases Association &#8211; Home"},"content":{"rendered":"<p><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container has-pattern-background has-mask-background hundred-percent-fullwidth non-hundred-percent-height-scrolling fusion-no-small-visibility fusion-custom-z-index\" style=\"--awb-background-position:center 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fusion-custom-z-index\" style=\"--awb-background-position:center bottom;--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-z-index:0;--awb-padding-top:0px;--awb-padding-right:0px;--awb-padding-bottom:0px;--awb-padding-left:0px;--awb-padding-bottom-small:0px;--awb-margin-top:-20px;--awb-margin-bottom:0px;--awb-background-image:url(&quot;https:\/\/ntsad.org\/wp-content\/uploads\/2022\/07\/Cover-3.jpg&quot;);--awb-background-size:cover;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-align-content-flex-start fusion-flex-content-wrap\" style=\"width:104% !important;max-width:104% !important;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-1 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0%;--awb-spacing-right-large:0%;--awb-margin-bottom-large:0%;--awb-spacing-left-large:0%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:0%;--awb-spacing-left-medium:0%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-builder-row fusion-builder-row-inner fusion-row fusion-flex-align-items-flex-start fusion-flex-align-content-flex-start fusion-flex-content-wrap\" style=\"width:104% !important;max-width:104% !important;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column_inner fusion-builder-nested-column-0 fusion_builder_column_inner_1_1 1_1 fusion-flex-column fusion-flex-align-self-center fusion-animated\" style=\"--awb-padding-top-small:15px;--awb-padding-right-small:15px;--awb-padding-bottom-small:5px;--awb-padding-left-small:15px;--awb-overflow:hidden;--awb-bg-color:rgba(100,47,108,0.91);--awb-bg-color-hover:rgba(100,47,108,0.91);--awb-bg-size:cover;--awb-border-radius:6px 6px 6px 6px;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-margin-top-small:325px;--awb-spacing-right-small:5.76%;--awb-spacing-left-small:5.76%;\" data-animationType=\"fadeInUp\" data-animationDuration=\"1.3\" data-animationOffset=\"top-into-view\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-2 sm-text-align-center fusion-text-no-margin\" style=\"--awb-text-color:var(--awb-color1);--awb-margin-bottom:0px;--awb-text-font-family:&quot;Lato&quot;;--awb-text-font-style:normal;--awb-text-font-weight:700;\"><p>National Tay-Sachs &amp; Allied Diseases Association<\/p>\n<\/div><div class=\"fusion-title title fusion-title-1 fusion-sep-none fusion-title-text fusion-title-size-one\" style=\"--awb-text-color:var(--awb-color1);--awb-margin-top-small:0px;--awb-font-size:40px;\"><h1 class=\"fusion-title-heading title-heading-left sm-text-align-center\" style=\"font-family:&quot;Lato&quot;;font-style:normal;font-weight:900;margin:0;font-size:1em;\">The Power of Community<\/h1><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-3 fusion-flex-container has-pattern-background has-mask-background nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-padding-top:50px;--awb-padding-right:5%;--awb-padding-bottom:50px;--awb-padding-left:5%;--awb-padding-right-medium:52.2969px;--awb-padding-top-small:25px;--awb-padding-right-small:25px;--awb-padding-bottom-small:25px;--awb-padding-left-small:25px;--awb-background-color:rgba(100,47,108,0.17);--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:2496px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-2 fusion_builder_column_1_4 1_4 fusion-flex-column fusion-flex-align-self-stretch fusion-animated\" style=\"--awb-padding-top:35px;--awb-padding-right:25px;--awb-padding-bottom:35px;--awb-padding-left:25px;--awb-overflow:visible;--awb-bg-color:var(--awb-color1);--awb-bg-color-hover:var(--awb-color1);--awb-bg-size:cover;--awb-box-shadow:1px 5px 12px -4px var(--awb-color4);;--awb-border-radius:6px 6px 6px 6px;--awb-width-large:25%;--awb-margin-top-large:0px;--awb-spacing-right-large:7.68%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:7.68%;--awb-width-medium:50%;--awb-order-medium:0;--awb-spacing-right-medium:3.84%;--awb-margin-bottom-medium:20px;--awb-spacing-left-medium:3.84%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-animationType=\"fadeInDown\" data-animationDuration=\"1.3\" data-animationOffset=\"top-into-view\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-image-element \" style=\"text-align:center;--awb-caption-title-font-family:var(--h2_typography-font-family);--awb-caption-title-font-weight:var(--h2_typography-font-weight);--awb-caption-title-font-style:var(--h2_typography-font-style);--awb-caption-title-size:var(--h2_typography-font-size);--awb-caption-title-transform:var(--h2_typography-text-transform);--awb-caption-title-line-height:var(--h2_typography-line-height);--awb-caption-title-letter-spacing:var(--h2_typography-letter-spacing);\"><span class=\" fusion-imageframe imageframe-none imageframe-1 hover-type-none\"><img decoding=\"async\" width=\"400\" height=\"391\" title=\"CIrcleImage-Diseases\" src=\"https:\/\/ntsad.org\/wp-content\/uploads\/2022\/10\/CIrcleImage-Diseases-400x391.png\" alt class=\"img-responsive wp-image-916\" srcset=\"https:\/\/ntsad.org\/wp-content\/uploads\/2022\/10\/CIrcleImage-Diseases-200x195.png 200w, https:\/\/ntsad.org\/wp-content\/uploads\/2022\/10\/CIrcleImage-Diseases-400x391.png 400w, https:\/\/ntsad.org\/wp-content\/uploads\/2022\/10\/CIrcleImage-Diseases-600x586.png 600w, https:\/\/ntsad.org\/wp-content\/uploads\/2022\/10\/CIrcleImage-Diseases.png 678w\" sizes=\"(max-width: 416px) 100vw, 600px\" \/><\/span><\/div><div class=\"fusion-title title fusion-title-2 fusion-sep-none fusion-title-center fusion-title-text fusion-title-size-three\" style=\"--awb-text-color:var(--awb-color4);\"><h3 class=\"fusion-title-heading title-heading-center\" style=\"margin:0;\">Diseases<\/h3><\/div><div class=\"fusion-text fusion-text-3\" style=\"--awb-content-alignment:left;--awb-text-font-family:&quot;Lato&quot;;--awb-text-font-style:normal;--awb-text-font-weight:400;\"><p style=\"font-family: Lato; font-weight: 300;\" data-fusion-font=\"true\" data-fusion-google-font=\"Lato\" data-fusion-google-variant=\"300\">Get reliable and accurate information about Tay-Sachs, Canavan, GM1, and Sandhoff diseases.<\/p>\n<\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;flex-grow:1;width:100%;\"><\/div><div style=\"text-align:center;\"><a class=\"fusion-button button-flat button-xlarge button-default fusion-button-default button-1 fusion-button-default-span fusion-button-default-type\" target=\"_self\" href=\"https:\/\/ntsad.org\/diseases\/\"><span class=\"fusion-button-text\">Learn More<\/span><\/a><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-3 fusion_builder_column_1_4 1_4 fusion-flex-column fusion-flex-align-self-stretch fusion-animated\" style=\"--awb-padding-top:35px;--awb-padding-right:25px;--awb-padding-bottom:35px;--awb-padding-left:25px;--awb-overflow:visible;--awb-bg-color:var(--awb-color1);--awb-bg-color-hover:var(--awb-color1);--awb-bg-size:cover;--awb-box-shadow:1px 5px 12px -4px var(--awb-color4);;--awb-border-radius:6px 6px 6px 6px;--awb-width-large:25%;--awb-margin-top-large:0px;--awb-spacing-right-large:7.68%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:7.68%;--awb-width-medium:50%;--awb-order-medium:0;--awb-spacing-right-medium:3.84%;--awb-margin-bottom-medium:20px;--awb-spacing-left-medium:3.84%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-animationType=\"fadeInDown\" data-animationDuration=\"1.3\" data-animationOffset=\"top-into-view\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-image-element \" style=\"text-align:center;--awb-caption-title-font-family:var(--h2_typography-font-family);--awb-caption-title-font-weight:var(--h2_typography-font-weight);--awb-caption-title-font-style:var(--h2_typography-font-style);--awb-caption-title-size:var(--h2_typography-font-size);--awb-caption-title-transform:var(--h2_typography-text-transform);--awb-caption-title-line-height:var(--h2_typography-line-height);--awb-caption-title-letter-spacing:var(--h2_typography-letter-spacing);\"><span class=\" fusion-imageframe imageframe-none imageframe-2 hover-type-none\"><img decoding=\"async\" width=\"678\" height=\"662\" title=\"CIrcleImage-FamilySupport\" src=\"https:\/\/ntsad.org\/wp-content\/uploads\/2022\/09\/CIrcleImage-FamilySupport.png\" alt class=\"img-responsive wp-image-816\" srcset=\"https:\/\/ntsad.org\/wp-content\/uploads\/2022\/09\/CIrcleImage-FamilySupport-200x195.png 200w, https:\/\/ntsad.org\/wp-content\/uploads\/2022\/09\/CIrcleImage-FamilySupport-400x391.png 400w, https:\/\/ntsad.org\/wp-content\/uploads\/2022\/09\/CIrcleImage-FamilySupport-600x586.png 600w, https:\/\/ntsad.org\/wp-content\/uploads\/2022\/09\/CIrcleImage-FamilySupport.png 678w\" sizes=\"(max-width: 416px) 100vw, 600px\" \/><\/span><\/div><div class=\"fusion-title title fusion-title-3 fusion-sep-none fusion-title-center fusion-title-text fusion-title-size-three\" style=\"--awb-text-color:var(--awb-color4);--awb-margin-right:-15px;--awb-margin-left:-15px;\"><h3 class=\"fusion-title-heading title-heading-center\" style=\"margin:0;\">Family Support<\/h3><\/div><div class=\"fusion-text fusion-text-4\" style=\"--awb-content-alignment:left;--awb-text-font-family:&quot;Lato&quot;;--awb-text-font-style:normal;--awb-text-font-weight:400;\"><p style=\"font-family: Lato; font-weight: 300;\" data-fusion-font=\"true\" data-fusion-google-font=\"Lato\" data-fusion-google-variant=\"300\">Connect with our Family Services Team who will answer your questions and share resources to help you navigate a diagnosis.<\/p>\n<\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;flex-grow:1;width:100%;\"><\/div><div style=\"text-align:center;\"><a class=\"fusion-button button-flat button-xlarge button-default fusion-button-default button-2 fusion-button-default-span fusion-button-default-type\" target=\"_self\" href=\"https:\/\/ntsad.org\/family-support\/\"><span class=\"fusion-button-text\">Learn More<\/span><\/a><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-4 fusion_builder_column_1_4 1_4 fusion-flex-column fusion-flex-align-self-stretch fusion-animated\" style=\"--awb-padding-top:35px;--awb-padding-right:25px;--awb-padding-bottom:35px;--awb-padding-left:25px;--awb-overflow:visible;--awb-bg-color:var(--awb-color1);--awb-bg-color-hover:var(--awb-color1);--awb-bg-size:cover;--awb-box-shadow:1px 5px 12px -4px var(--awb-color4);;--awb-border-radius:6px 6px 6px 6px;--awb-width-large:25%;--awb-margin-top-large:0px;--awb-spacing-right-large:7.68%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:7.68%;--awb-width-medium:50%;--awb-order-medium:0;--awb-spacing-right-medium:3.84%;--awb-spacing-left-medium:3.84%;--awb-width-small:100%;--awb-order-small:2;--awb-margin-top-small:25px;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-animationType=\"fadeInDown\" data-animationDuration=\"1.3\" data-animationOffset=\"top-into-view\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-image-element \" style=\"text-align:center;--awb-caption-title-font-family:var(--h2_typography-font-family);--awb-caption-title-font-weight:var(--h2_typography-font-weight);--awb-caption-title-font-style:var(--h2_typography-font-style);--awb-caption-title-size:var(--h2_typography-font-size);--awb-caption-title-transform:var(--h2_typography-text-transform);--awb-caption-title-line-height:var(--h2_typography-line-height);--awb-caption-title-letter-spacing:var(--h2_typography-letter-spacing);\"><span class=\" fusion-imageframe imageframe-none imageframe-3 hover-type-none\"><img decoding=\"async\" width=\"678\" height=\"662\" title=\"CircleImage-Research\" src=\"https:\/\/ntsad.org\/wp-content\/uploads\/2022\/09\/CircleImage-Research.png\" alt class=\"img-responsive wp-image-818\" srcset=\"https:\/\/ntsad.org\/wp-content\/uploads\/2022\/09\/CircleImage-Research-200x195.png 200w, https:\/\/ntsad.org\/wp-content\/uploads\/2022\/09\/CircleImage-Research-400x391.png 400w, https:\/\/ntsad.org\/wp-content\/uploads\/2022\/09\/CircleImage-Research-600x586.png 600w, https:\/\/ntsad.org\/wp-content\/uploads\/2022\/09\/CircleImage-Research.png 678w\" sizes=\"(max-width: 416px) 100vw, 600px\" \/><\/span><\/div><div class=\"fusion-title title fusion-title-4 fusion-sep-none fusion-title-center fusion-title-text fusion-title-size-three\" style=\"--awb-text-color:var(--awb-color4);\"><h3 class=\"fusion-title-heading title-heading-center\" style=\"margin:0;\">Research<\/h3><\/div><div class=\"fusion-text fusion-text-5\" style=\"--awb-content-alignment:left;--awb-text-font-family:&quot;Lato&quot;;--awb-text-font-style:normal;--awb-text-font-weight:400;\"><p style=\"font-family: Lato; font-weight: 300;\" data-fusion-font=\"true\" data-fusion-google-font=\"Lato\" data-fusion-google-variant=\"300\">Learn about ongoing studies, clinical trials, funding opportunities, and research initiatives, and browse our research library.<\/p>\n<\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;flex-grow:1;width:100%;\"><\/div><div style=\"text-align:center;\"><a class=\"fusion-button button-flat button-xlarge button-default fusion-button-default button-3 fusion-button-default-span fusion-button-default-type\" target=\"_self\" href=\"https:\/\/ntsad.org\/research\/\"><span class=\"fusion-button-text\">Learn More<\/span><\/a><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-5 fusion_builder_column_1_4 1_4 fusion-flex-column fusion-flex-align-self-stretch fusion-animated\" style=\"--awb-padding-top:35px;--awb-padding-right:25px;--awb-padding-bottom:35px;--awb-padding-left:25px;--awb-overflow:visible;--awb-bg-color:var(--awb-color1);--awb-bg-color-hover:var(--awb-color1);--awb-bg-size:cover;--awb-box-shadow:1px 5px 12px -4px var(--awb-color4);;--awb-border-radius:6px 6px 6px 6px;--awb-width-large:25%;--awb-margin-top-large:0px;--awb-spacing-right-large:7.68%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:7.68%;--awb-width-medium:50%;--awb-order-medium:0;--awb-spacing-right-medium:3.84%;--awb-spacing-left-medium:3.84%;--awb-width-small:100%;--awb-order-small:4;--awb-margin-top-small:25px;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-animationType=\"fadeInDown\" data-animationDuration=\"1.3\" data-animationOffset=\"top-into-view\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-image-element \" style=\"text-align:center;--awb-caption-title-font-family:var(--h2_typography-font-family);--awb-caption-title-font-weight:var(--h2_typography-font-weight);--awb-caption-title-font-style:var(--h2_typography-font-style);--awb-caption-title-size:var(--h2_typography-font-size);--awb-caption-title-transform:var(--h2_typography-text-transform);--awb-caption-title-line-height:var(--h2_typography-line-height);--awb-caption-title-letter-spacing:var(--h2_typography-letter-spacing);\"><span class=\" fusion-imageframe imageframe-none imageframe-4 hover-type-none\" style=\"z-index:20;\"><img decoding=\"async\" width=\"678\" height=\"662\" title=\"CircleImage-Collaboration\" src=\"https:\/\/ntsad.org\/wp-content\/uploads\/2022\/09\/CircleImage-Collaboration.png\" alt class=\"img-responsive wp-image-817\" srcset=\"https:\/\/ntsad.org\/wp-content\/uploads\/2022\/09\/CircleImage-Collaboration-200x195.png 200w, https:\/\/ntsad.org\/wp-content\/uploads\/2022\/09\/CircleImage-Collaboration-400x391.png 400w, https:\/\/ntsad.org\/wp-content\/uploads\/2022\/09\/CircleImage-Collaboration-600x586.png 600w, https:\/\/ntsad.org\/wp-content\/uploads\/2022\/09\/CircleImage-Collaboration.png 678w\" sizes=\"(max-width: 416px) 100vw, 600px\" \/><\/span><\/div><div class=\"fusion-title title fusion-title-5 fusion-sep-none fusion-title-center fusion-title-text fusion-title-size-three\" style=\"--awb-text-color:var(--awb-color4);\"><h3 class=\"fusion-title-heading title-heading-center\" style=\"margin:0;\">Events<\/h3><\/div><div class=\"fusion-text fusion-text-6\" style=\"--awb-content-alignment:left;--awb-margin-right:15px;--awb-margin-left:15px;--awb-text-font-family:&quot;Lato&quot;;--awb-text-font-style:normal;--awb-text-font-weight:400;\"><p><span style=\"font-family: Lato; font-weight: 300;\" data-fusion-font=\"true\" data-fusion-google-font=\"Lato\" data-fusion-google-variant=\"300\">Attend and support events that bring our Community together and raise awareness and critical funds.<\/span><\/p>\n<\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;flex-grow:1;width:100%;\"><\/div><div style=\"text-align:center;\"><a class=\"fusion-button button-flat button-xlarge button-default fusion-button-default button-4 fusion-button-default-span fusion-button-default-type\" target=\"_self\" href=\"https:\/\/ntsad.org\/events\/\"><span class=\"fusion-button-text\">Learn More<\/span><\/a><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-4 fusion-flex-container has-pattern-background has-mask-background nonhundred-percent-fullwidth non-hundred-percent-height-scrolling fusion-animated\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-padding-top:62px;--awb-padding-right:74px;--awb-padding-bottom:64px;--awb-padding-left:80px;--awb-padding-top-small:25px;--awb-padding-right-small:25px;--awb-padding-bottom-small:25px;--awb-padding-left-small:25px;--awb-flex-wrap:wrap;\" data-animationType=\"fadeInUp\" data-animationDuration=\"1.3\" data-animationOffset=\"top-into-view\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:2496px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-6 fusion_builder_column_3_4 3_4 fusion-flex-column fusion-flex-align-self-center\" style=\"--awb-bg-size:cover;--awb-width-large:75%;--awb-margin-top-large:0px;--awb-spacing-right-large:2.56%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:2.56%;--awb-width-medium:75%;--awb-order-medium:0;--awb-spacing-right-medium:2.56%;--awb-spacing-left-medium:2.56%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-title title fusion-title-6 fusion-sep-none fusion-title-text fusion-title-size-one\" style=\"--awb-margin-bottom:0px;--awb-font-size:50px;\"><h1 class=\"fusion-title-heading title-heading-left\" style=\"margin:0;font-size:1em;\">NTSAD News &amp; Events<\/h1><\/div><div class=\"fusion-title title fusion-title-7 fusion-no-small-visibility fusion-sep-none fusion-title-text fusion-title-size-two\" style=\"--awb-text-color:var(--awb-color4);--awb-margin-top:0px;--awb-font-size:25px;\"><h2 class=\"fusion-title-heading title-heading-left\" style=\"margin:0;font-size:1em;\">Read the Latest News and Subscribe to our Community Newsletter.<\/h2><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-7 fusion_builder_column_1_4 1_4 fusion-flex-column fusion-flex-align-self-center fusion-no-small-visibility\" style=\"--awb-bg-size:cover;--awb-width-large:25%;--awb-margin-top-large:0px;--awb-spacing-right-large:7.68%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:7.68%;--awb-width-medium:25%;--awb-order-medium:0;--awb-spacing-right-medium:7.68%;--awb-spacing-left-medium:7.68%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"md-text-align-center\" style=\"text-align:right;\"><a class=\"fusion-button button-flat button-xlarge button-default fusion-button-default button-5 fusion-button-default-span fusion-button-default-type\" target=\"_self\" href=\"https:\/\/ntsad.org\/support-for-families\/community-news\/\"><span class=\"fusion-button-text\">Read More News<\/span><\/a><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-8 fusion_builder_column_1_2 1_2 fusion-flex-column fusion-flex-align-self-stretch\" style=\"--awb-padding-top:25px;--awb-padding-right:35px;--awb-padding-bottom:25px;--awb-padding-left:35px;--awb-overflow:hidden;--awb-bg-color:rgba(100,47,108,0.11);--awb-bg-color-hover:rgba(100,47,108,0.11);--awb-bg-size:cover;--awb-border-radius:6px 6px 6px 6px;--awb-width-large:50%;--awb-margin-top-large:0px;--awb-spacing-right-large:3.84%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:3.84%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-margin-bottom-small:20px;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-builder-row fusion-builder-row-inner fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"width:104% !important;max-width:104% !important;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column_inner fusion-builder-nested-column-1 fusion_builder_column_inner_3_5 3_5 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:60%;--awb-margin-top-large:0px;--awb-spacing-right-large:3.2%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:3.2%;--awb-width-medium:60%;--awb-order-medium:0;--awb-spacing-right-medium:3.2%;--awb-spacing-left-medium:3.2%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-7 fusion-text-no-margin\" style=\"--awb-margin-bottom:0px;\"><p><b style=\"font-size: 16px;\" data-fusion-font=\"true\">February 2024 Issue<\/b><\/p>\n<\/div><div class=\"fusion-title title fusion-title-8 fusion-sep-none fusion-title-text fusion-title-size-two\" style=\"--awb-margin-top:0px;--awb-margin-top-small:0px;--awb-font-size:40px;\"><h2 class=\"fusion-title-heading title-heading-left\" style=\"margin:0;font-size:1em;\">Community News<\/h2><\/div><div class=\"fusion-text fusion-text-8\"><p>In this Issue:<\/p>\n<table class=\"text text--padding-vertical\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\" data-cpeid=\"w-1661524827568-550\">\n<tbody>\n<tr>\n<td class=\"text_content-cell content-padding-horizontal\" align=\"left\" valign=\"top\">\n<ul>\n<li>\nIn Loving Memory: Judy Gottlieb<\/li>\n<li>GM2 PFDD Meeting<\/li>\n<li>World Rare Disease Day<\/li>\n<li>2024 Annual Family Conference<\/li>\n<li>MFRF&#8217;s \u201cSweetness and Laughter\u201d Celebration<\/li>\n<li>2023 Impact Report<\/li>\n<li>Expanded Carrier Screening<\/li>\n<\/ul>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column_inner fusion-builder-nested-column-2 fusion_builder_column_inner_2_5 2_5 fusion-flex-column fusion-no-small-visibility\" style=\"--awb-padding-top:34px;--awb-bg-size:cover;--awb-width-large:40%;--awb-margin-top-large:0px;--awb-spacing-right-large:4.8%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:4.8%;--awb-width-medium:40%;--awb-order-medium:0;--awb-spacing-right-medium:4.8%;--awb-spacing-left-medium:4.8%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-image-element fusion-no-small-visibility fusion-no-medium-visibility\" style=\"text-align:center;--awb-caption-title-font-family:var(--h2_typography-font-family);--awb-caption-title-font-weight:var(--h2_typography-font-weight);--awb-caption-title-font-style:var(--h2_typography-font-style);--awb-caption-title-size:var(--h2_typography-font-size);--awb-caption-title-transform:var(--h2_typography-text-transform);--awb-caption-title-line-height:var(--h2_typography-line-height);--awb-caption-title-letter-spacing:var(--h2_typography-letter-spacing);\"><span class=\" fusion-imageframe imageframe-dropshadow imageframe-5 hover-type-none\" style=\"-webkit-box-shadow: 3px 3px 7px rgba(0,0,0,0.28);box-shadow: 3px 3px 7px rgba(0,0,0,0.28);\"><img decoding=\"async\" width=\"150\" height=\"220\" title=\"150&#215;2202-ezgif.com-webp-to-jpg-converter\" src=\"https:\/\/ntsad.org\/wp-content\/uploads\/2024\/02\/150x2202-ezgif.com-webp-to-jpg-converter.jpg\" alt class=\"img-responsive wp-image-5021\"\/><\/span><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column_inner fusion-builder-nested-column-3 fusion_builder_column_inner_1_2 1_2 fusion-flex-column fusion-flex-align-self-center\" style=\"--awb-bg-size:cover;--awb-width-large:50%;--awb-margin-top-large:0px;--awb-spacing-right-large:3.84%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:3.84%;--awb-width-medium:50%;--awb-order-medium:0;--awb-spacing-right-medium:3.84%;--awb-spacing-left-medium:3.84%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div style=\"text-align:center;\"><a class=\"fusion-button button-flat button-xlarge button-default fusion-button-default button-6 fusion-button-default-span fusion-button-default-type\" target=\"_blank\" rel=\"noopener noreferrer\" href=\"https:\/\/conta.cc\/3I2l9ow\"><span class=\"fusion-button-text\">Read this Issue<\/span><\/a><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column_inner fusion-builder-nested-column-4 fusion_builder_column_inner_1_2 1_2 fusion-flex-column fusion-flex-align-self-center fusion-no-small-visibility\" style=\"--awb-bg-size:cover;--awb-width-large:50%;--awb-margin-top-large:0px;--awb-spacing-right-large:3.84%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:3.84%;--awb-width-medium:50%;--awb-order-medium:0;--awb-spacing-right-medium:3.84%;--awb-spacing-left-medium:3.84%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"md-text-align-center sm-text-align-center\"><a class=\"fusion-button button-flat button-xlarge button-default fusion-button-default button-7 fusion-button-default-span fusion-button-default-type\" target=\"_self\" href=\"#community-news\"><span class=\"fusion-button-text\">Subscribe for News<\/span><\/a><\/div><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-9 fusion_builder_column_1_2 1_2 fusion-flex-column fusion-flex-align-self-stretch\" style=\"--awb-padding-top:35px;--awb-padding-right:30px;--awb-padding-bottom:190px;--awb-padding-left:30px;--awb-padding-top-small:23px;--awb-padding-bottom-small:40px;--awb-overflow:hidden;--awb-bg-color:var(--awb-custom_color_4);--awb-bg-color-hover:var(--awb-custom_color_4);--awb-bg-position:left bottom;--awb-bg-size:cover;--awb-box-shadow:1px 5px 12px -4px rgba(25,25,25,0.4);;--awb-border-color:var(--awb-color3);--awb-border-top:1px;--awb-border-right:1px;--awb-border-bottom:1px;--awb-border-left:1px;--awb-border-style:solid;--awb-border-radius:6px 6px 6px 6px;--awb-width-large:50%;--awb-margin-top-large:0px;--awb-spacing-right-large:3.84%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:3.84%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-end fusion-content-layout-column\"><div class=\"fusion-image-element \" style=\"text-align:center;--awb-margin-bottom:30px;--awb-caption-title-font-family:var(--h2_typography-font-family);--awb-caption-title-font-weight:var(--h2_typography-font-weight);--awb-caption-title-font-style:var(--h2_typography-font-style);--awb-caption-title-size:var(--h2_typography-font-size);--awb-caption-title-transform:var(--h2_typography-text-transform);--awb-caption-title-line-height:var(--h2_typography-line-height);--awb-caption-title-letter-spacing:var(--h2_typography-letter-spacing);\"><span class=\" fusion-imageframe imageframe-none imageframe-6 hover-type-none\"><img decoding=\"async\" width=\"1024\" height=\"241\" title=\"GM2 PFDD Meeting\" src=\"https:\/\/ntsad.org\/wp-content\/uploads\/2023\/12\/GM2-PFDD-Meeting-1-1024x241.png\" alt class=\"img-responsive wp-image-4780\" srcset=\"https:\/\/ntsad.org\/wp-content\/uploads\/2023\/12\/GM2-PFDD-Meeting-1-200x47.png 200w, https:\/\/ntsad.org\/wp-content\/uploads\/2023\/12\/GM2-PFDD-Meeting-1-400x94.png 400w, https:\/\/ntsad.org\/wp-content\/uploads\/2023\/12\/GM2-PFDD-Meeting-1-600x142.png 600w, https:\/\/ntsad.org\/wp-content\/uploads\/2023\/12\/GM2-PFDD-Meeting-1-800x189.png 800w, https:\/\/ntsad.org\/wp-content\/uploads\/2023\/12\/GM2-PFDD-Meeting-1-1200x283.png 1200w\" sizes=\"(max-width: 416px) 100vw, 1200px\" \/><\/span><\/div><div class=\"fusion-text fusion-text-9 fusion-no-small-visibility\" style=\"--awb-content-alignment:right;\"><div style=\"text-align: left;\">On February 15, the GM2 Community shared their experiences of living with Tay-Sachs and Sandhoff diseases during the first-ever, Externally-Led Patient-Focused Drug Development (EL-PFDD) Meeting with the FDA.<\/p>\n<p>You can watch a recording of the GM2 EL-PFDD Meeting <a href=\"https:\/\/ntsad.org\/events\/gm2pfdd\/\">here.<\/a><\/p>\n<p>Stay tuned for the summary of this first-ever meeting in the &#8220;Voice of the Patient&#8221; report in the late spring\/early summer.<\/p>\n<\/div>\n<\/div><div class=\"fusion-text fusion-text-10 sm-text-align-center fusion-no-medium-visibility fusion-no-large-visibility\" style=\"--awb-content-alignment:right;\"><p>On Thursday, November 10, 2022, the NTSAD Community will gather at the Royal Sonesta in Boston for the first in-person Imagine &amp; Believe event in three years to commemorate NTSAD\u2019s 65th Anniversary.<\/p>\n<\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-5 fusion-flex-container has-pattern-background has-mask-background fusion-parallax-none nonhundred-percent-fullwidth non-hundred-percent-height-scrolling fusion-animated\" style=\"--awb-background-position:center bottom;--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-padding-top:20%;--awb-padding-bottom:5%;--awb-padding-left:5%;--awb-padding-top-small:427.391px;--awb-background-image:url(&quot;https:\/\/ntsad.org\/wp-content\/uploads\/2022\/07\/Cover-5.jpg&quot;);--awb-background-size:cover;--awb-flex-wrap:wrap;\" data-animationType=\"fadeIn\" data-animationDuration=\"1.3\" data-animationOffset=\"top-into-view\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:2496px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-10 fusion_builder_column_2_5 2_5 fusion-flex-column fusion-flex-align-self-flex-end fusion-animated\" style=\"--awb-padding-top:25px;--awb-padding-right:25px;--awb-padding-bottom:25px;--awb-padding-left:25px;--awb-overflow:hidden;--awb-bg-color:rgba(65,0,68,0.82);--awb-bg-color-hover:rgba(65,0,68,0.82);--awb-bg-size:cover;--awb-border-color:var(--awb-color1);--awb-border-top:2px;--awb-border-right:2px;--awb-border-bottom:2px;--awb-border-left:2px;--awb-border-style:solid;--awb-border-radius:6px 6px 6px 6px;--awb-width-large:40%;--awb-margin-top-large:0px;--awb-spacing-right-large:4.8%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:4.8%;--awb-width-medium:40%;--awb-order-medium:0;--awb-spacing-right-medium:4.8%;--awb-spacing-left-medium:4.8%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-animationType=\"bounceInLeft\" data-animationDuration=\"1.3\" data-animationOffset=\"top-into-view\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-title title fusion-title-9 fusion-sep-none fusion-title-text fusion-title-size-one\" style=\"--awb-text-color:var(--awb-color1);--awb-font-size:60px;\"><h1 class=\"fusion-title-heading title-heading-left\" style=\"margin:0;font-size:1em;\"><span style=\"font-family: Itim;\" data-fusion-font=\"true\" data-fusion-google-font=\"Itim\" data-fusion-google-variant=\"400\">We Care for Rare<\/span><\/h1><\/div><div class=\"fusion-text fusion-text-11\"><p style=\"color: var(--awb-color1);\"><b data-fusion-font=\"true\"><span style=\"font-size: 25px; color: var(--awb-color8);\" data-fusion-font=\"true\"><span style=\"font-size: 35px; color: #ffffff;\" data-fusion-font=\"true\">Jessie Jackson<\/span><br \/>\n<\/span><\/b><b style=\"color: #ffffff; font-family: var(--body_typography-font-family); font-size: 18px; font-style: var(--body_typography-font-style,normal); letter-spacing: var(--body_typography-letter-spacing);\" data-fusion-font=\"true\">Juvenile GM1 Disease<\/b><\/p>\n<\/div><div class=\"fusion-text fusion-text-12\" style=\"--awb-margin-right:30px;--awb-margin-left:20px;\"><p style=\"font-family: Itim; font-weight: 400; font-size: 28px; line-height: 31px; color: var(--awb-color1);\" data-fusion-font=\"true\" data-fusion-google-font=\"Itim\" data-fusion-google-variant=\"400\">&#8220;Jessie (age 30) loves going on adventures! Like going to Nitro Harley Racing. She is not about to let GM1 keep her from LIVING life!&#8221;<\/p>\n<\/div><div class=\"fusion-text fusion-text-13\"><p style=\"color: var(--awb-color1);\"><b>Merlie Jackson, Jessie&#8217;s Mom<\/b><\/p>\n<\/div><div ><a class=\"fusion-button button-flat button-xlarge button-custom fusion-button-default button-8 fusion-button-default-span fusion-button-default-type\" style=\"--button_accent_color:var(--awb-color8);--button_border_color:var(--awb-color8);--button_accent_hover_color:var(--awb-color8);--button_border_hover_color:var(--awb-color8);--button_gradient_top_color:var(--awb-color1);--button_gradient_bottom_color:var(--awb-color1);--button_gradient_top_color_hover:var(--awb-color3);--button_gradient_bottom_color_hover:var(--awb-color3);\" target=\"_self\" href=\"https:\/\/ntsad.org\/we-care-for-rare\/\"><span class=\"fusion-button-text\">Read More Rare Stories<\/span><\/a><\/div><\/div><\/div><\/div><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"100-width.php","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>National Tay-Sachs &amp; Allied Diseases Association - Home<\/title>\n<meta name=\"description\" content=\"National Tay-Sachs &amp; Allied Diseases Association leads the worldwide mission to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ntsad.org\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"National Tay-Sachs &amp; Allied Diseases Association - Home\" \/>\n<meta property=\"og:description\" content=\"National Tay-Sachs &amp; Allied Diseases Association leads the worldwide mission to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/ntsad.org\/\" \/>\n<meta property=\"og:site_name\" content=\"NTSAD\" \/>\n<meta property=\"article:publisher\" content=\"http:\/\/www.facebook.com\/pages\/National-Tay-Sachs-Allied-Diseases-Association-Inc-NTSAD\/102990173079421\" \/>\n<meta property=\"article:modified_time\" content=\"2024-03-27T20:41:52+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:site\" content=\"@NTSAD\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"12 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/ntsad.org\/\",\"url\":\"https:\/\/ntsad.org\/\",\"name\":\"National Tay-Sachs & Allied Diseases Association - Home\",\"isPartOf\":{\"@id\":\"https:\/\/ntsad.org\/#website\"},\"datePublished\":\"2022-08-05T04:24:08+00:00\",\"dateModified\":\"2024-03-27T20:41:52+00:00\",\"description\":\"National Tay-Sachs & Allied Diseases Association leads the worldwide mission to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases.\",\"breadcrumb\":{\"@id\":\"https:\/\/ntsad.org\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/ntsad.org\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/ntsad.org\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/ntsad.org\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"National Tay-Sachs &#038; 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