National Tay-Sachs & Allied Diseases Association
Valerie Greger, PhD
Director of Research
In September 2021 Valerie Greger, PhD joined NTSAD as the organization’s first Research Director. She is an accomplished academic, scientist, and leader with extensive experience in human genetics, genomics, molecular biology, and bioinformatics.
In her role, Valerie leads NTSAD’s research grant program and implements initiatives in clinical development, newborn screening, and early diagnosis. She also serves as a resource for communicating scientific and medical information to patients.
Valerie is passionate about creating value from scientific discoveries, transforming ideas into reality, and making an impact on patients’ lives. Valerie is working part-time at NTSAD, as she also works with the Yaya Foundation for 4H LeukodystrophyA group of rare genetic disorders that affect the central nervous system by disrupting the growth or maintenance of the myelin sheath that insulates nerve cells. Myelin is commonly referred to as the brain's "white matter", myelin covers nerve cells and ensures the clear transmission of nerve impulses from one part of the body to another. These disorders are progressive, meaning that they tend to get worse throughout the life of the patient. The word leukodystrophy comes from the Greek words leuko (meaning white), trophy (meaning growth), and dys (meaning ill). If you put these words together, the word leukodystrophy describes a set of diseases that affect the growth or maintenance of the white matter (myelin). More. Her combined experience at these organizations will enhance research in the rare leukodystrophy community.
To reach Valerie, email her at firstname.lastname@example.org.
NTSAD Staff Profiles
Kathleen M. Flynn
Director of Family Services
Director of Development