In September 2021 Valerie Greger, PhD joined NTSAD as the organization’s first Research Director. She is an accomplished academic, scientist, and leader with extensive experience in human genetics, genomics, molecular biology, and bioinformatics.
In her role, Valerie leads NTSAD’s research grant program and implements initiatives in clinical development, newborn screening, and early diagnosis. She also serves as a resource for communicating scientific and medical information to patients.
Valerie is passionate about creating value from scientific discoveries, transforming ideas into reality, and making an impact on patients’ lives. Valerie is working part-time at NTSAD, as she also works with the Yaya Foundation for 4H LeukodystrophyA group of rare genetic disorders that affect the central nervous system by disrupting the growth or maintenance of the myelin sheath that insulates nerve cells. Myelin is commonly referred to as the brain's "white matter", myelin covers nerve cells and ensures the clear transmission of nerve impulses from one part of the body to another. These disorders are progressive, meaning that they tend to get worse throughout the life of the patient. The word leukodystrophy comes from the Greek words leuko (meaning white), trophy (meaning growth), and dys (meaning ill). If you put these words together, the word leukodystrophy describes a set of diseases that affect the growth or maintenance of the white matter (myelin). More. Her combined experience at these organizations will enhance research in the rare leukodystrophy community.
National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging collaboration, and fostering community. Supporting families is the center of everything we do.
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The National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging collaboration, and fostering community. Supporting families is the center of everything we do.
Get the latest news from NTSAD about our Community, the research that provides hope, and what is happening in the world of rare disease.
2001 Beacon Street, Suite 204
Boston, MA 02135
(617) 277-4463 email@example.com
National Tay-Sachs & Allied Diseases Association
2001 Beacon Street, Suite 204, Boston, MA 02135
(617) 277-4463 | firstname.lastname@example.org