National Tay-Sachs & Allied Diseases Association


Staff Profile

Valerie Greger, PhD

Director of Research

In September 2021 Valerie Greger, PhD joined NTSAD as the organization’s first Research Director. She is an accomplished academic, scientist, and leader with extensive experience in human genetics, genomics, molecular biology, and bioinformatics.

In her role, Valerie leads NTSAD’s research grant program and implements initiatives in clinical development, newborn screening, and early diagnosis. She also serves as a resource for communicating scientific and medical information to patients.

Valerie is passionate about creating value from scientific discoveries, transforming ideas into reality, and making an impact on patients’ lives. Valerie is working part-time at NTSAD, as she also works with the Yaya Foundation for 4H Leukodystrophy. Her combined experience at these organizations will enhance research in the rare leukodystrophy community.

To reach Valerie, email her at

NTSAD Staff Profiles

Kathleen M. Flynn

Chief Executive

Diana Jussila

(formerly Pangonis)
Director of Family Services

Susan Keliher

Director of Development
and Communications

Becky Benson

Family Services

Sydnie Dimond

Development and
Communications Manager