National Tay-Sachs & Allied Diseases Association

The Power of Community

Diseases

Get reliable and accurate information about Tay-Sachs, Canavan, GM1, and Sandhoff diseases.

Family Support

Connect with our Family Services Team who will answer your questions and share resources to help you navigate a diagnosis.

Research

Learn about ongoing studies, clinical trials, funding opportunities, and research initiatives, and browse our research library.

Events

Attend and support events that bring our Community together and raise awareness and critical funds.

NTSAD News & Events

Read the Latest News and Subscribe to our Community Newsletter.

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January 2023 Issue

Community News

In this Issue:

  • 45th Annual Family Conference
  • A Rare Mom’s Goals for Her Daughter
  • Rare Disease Day
  • Remembering Fred Horak
  • Research Initiative Funding
  • NTSAD Seeking Finance Board Member
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On Thursday, November 10, 2022,
the NTSAD Community gathered
at the Royal Sonesta in Boston for the
first in-person Imagine & Believe
event in three years to commemorate
NTSAD’s 65th Anniversary.

On Thursday, November 10, 2022, the NTSAD Community will gather at the Royal Sonesta in Boston for the first in-person Imagine & Believe event in three years to commemorate NTSAD’s 65th Anniversary.

Learn More

We Care for Rare

Jessie Jackson
Juvenile GM1 Disease

“Jessie (age 30) loves going on adventures! Like going to Nitro Harley Racing. She is not about to let GM1 keep her from LIVING life!”

Merlie Jackson, Jessie’s Mom