National Tay-Sachs & Allied Diseases Association

The Power of Community

Diseases

Get reliable and accurate information about Tay-Sachs, Canavan, GM1, and Sandhoff diseases.

Family Support

Connect with our Family Services Team who will answer your questions and share resources to help you navigate a diagnosis.

Research

Learn about ongoing studies, clinical trials, funding opportunities, and research initiatives, and browse our research library.

Events

Attend and support events that bring our Community together and raise awareness and critical funds.

NTSAD News & Events

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More News

January 2024 Issue

Community Connections

In this Issue:

  • 2024 Year in Review
  • What’s Ahead for NTSAD in 2025?
  • Annual Family Conference
  • Sponsorship Opportunities
  • An Update from IntraBio
  • Canavan Biomarker News
  • RETRIEVE Clinical Study Findings
  • Mission Moment
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Transform Hope Today

As the year draws to a close, your generosity can light theway for families navigating the challenges of rare genetic disorders like Tay-Sachs, Canavan, and GM1 and GM2 gangliosidoses.

By supporting NTSAD, you bring hope to those who need it most—providing resources, advocacy, and a community of care to families and adults facing these diagnoses with courage and resilience.

Every gift fuels vital research, empowers families, and strengthens the fight for a brighter future.

Join us in making a difference today—because together, we can transform hope into action.

Join the NTSAD Team!

At NTSAD, we are dedicated to supporting families and advancing research. Join us in making a meaningful impact in the lives of people affected by Tay-Sachs, Canavan, GM1 and Sandhoff diseases.

Current Opportunities:

Administrative Assistant

Director of Development*

(*Previous experience required.)

For more information and to apply, please send a cover letter with salary requirements to jobs@ntsad.org.

**Apply today and become a part of the NTSAD family!**

We Care for Rare

Jessie Jackson
Juvenile GM1 Disease

“Jessie (age 30) loves going on adventures! Like going to Nitro Harley Racing. She is not about to let GM1 keep her from LIVING life!”

Merlie Jackson, Jessie’s Mom