Diseases

Get reliable and accurate information about Tay-Sachs, Canavan, GM1, and Sandhoff diseases.

Family Support

Connect with our Family Services Team who will answer your questions and share resources to help you navigate a diagnosis.

Research

Learn about ongoing studies, clinical trials, funding opportunities, and research initiatives, and browse our research library.

Events

Attend and support events that bring our Community together and raise awareness and critical funds.

NTSAD News & Events

Read the Latest News and Subscribe to our Community Newsletter.

More News
December 2025 Issue

NTSAD Community Connections

In this Issue:

  • GM1 and GM2 Burden of Caregiving Study
  • First U.S. Study Site Open for Azafaros’ Phase 3 Clinical Trial: NAVIGATE
  • Give Kids A Chance Act
  • Imagine & Believe
  • Lord Foundation $1,000,000 Gift
  • Giving Tuesday
  • Juvenile GM1 and GM2 Listening Session Summary
  • Community-Wide Holiday Party
  • NORD Claim Your Care Program
  • Worldwide Candle Lighting
  • Mission Moment
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What’s Ahead for NTSAD in 2025

December

  • Late Onset Supporting the Supporters Zoom Chat December 11 (second Thursday of each month)
  • Community-Wide Virtual Holiday Party December 17 at 7:00pm EST.
  • Late Onset Zoom Chat December 31 (last Wednesday of each month)

Join the NTSAD Team!

At NTSAD, we are dedicated to supporting families and advancing research. Join us in making a meaningful impact in the lives of people affected by Tay-Sachs, Canavan, GM1 and Sandhoff diseases.

Current Opportunities:

Administrative Assistant

Director of Development*

(*Previous experience required.)

For more information and to apply, please send a cover letter with salary requirements to jobs@ntsad.org.

**Apply today and become a part of the NTSAD family!**

We Care for Rare

Jessie Jackson
Juvenile GM1 Disease

“Jessie (age 30) loves going on adventures! Like going to Nitro Harley Racing. She is not about to let GM1 keep her from LIVING life!”

Merlie Jackson, Jessie’s Mom