Diseases

Get reliable and accurate information about Tay-Sachs, Canavan, GM1, and Sandhoff diseases.

Family Support

Connect with our Family Services Team who will answer your questions and share resources to help you navigate a diagnosis.

Research

Learn about ongoing studies, clinical trials, funding opportunities, and research initiatives, and browse our research library.

Events

Attend and support events that bring our Community together and raise awareness and critical funds.

NTSAD News & Events

Read the Latest News and Subscribe to our Community Newsletter.

April 2026 Issue

NTSAD Community Connections

In this Issue:

  • AAV9 Gene Therapy in Type II GM1 Gangliosidosis – A Phase 1-2 Trial
  • NTSAD Research Data Collection – We Need Your Help!
  • Interested in Fundraising?
  • #RAREis Scholarship Fund
  • Meet NTSAD’s Newest Team Member: Adie Woolf!
  • The Last Day to Register and Reserve Your Hotel Room for the Annual Family Conference is April 8!
  • 2026 Annual Family Conference Sessions: Schedule Overview
  • FREE Photography Sessions at the Annual Family Conference!
  • Join the All-Conference Zoom on April 8
  • Support Camps Snuggle and Active from Afar!
  • Mission Moment
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What’s Ahead for NTSAD in 2026

April

  • Passover April 1-9
  • Easter April 5
  • Late Onset Supporting the Supporters Zoom Chat April 9 (second Thursday of each month)
  • NO Late Onset Zoom Chat in April
  • Annual Family Conference April 30 – May 3

May

  • Bereaved Mother’s Day
  • Mother’s Day
  • Late Onset Supporting the Supporters Zoom Chat May 14 (second Thursday of each month)
  • Memorial Day May 25
  • Late Onset Zoom Chat in May 27 (last Monday of each month)

Join the NTSAD Team!

At NTSAD, we are dedicated to supporting families and advancing research. Join us in making a meaningful impact in the lives of people affected by Tay-Sachs, Canavan, GM1 and Sandhoff diseases.

Current Opportunities:

Administrative Assistant

Director of Development*

(*Previous experience required.)

For more information and to apply, please send a cover letter with salary requirements to jobs@ntsad.org.

**Apply today and become a part of the NTSAD family!**

We Care for Rare

Jessie Jackson
Juvenile GM1 Disease

“Jessie (age 30) loves going on adventures! Like going to Nitro Harley Racing. She is not about to let GM1 keep her from LIVING life!”

Merlie Jackson, Jessie’s Mom