National Tay-Sachs & Allied Diseases Association

The Power of Community


Get reliable and accurate information about Tay-Sachs, Canavan, GM1, and Sandhoff diseases.

Family Support

Connect with our Family Services Team who will answer your questions and share resources to help you navigate a diagnosis.


Learn about ongoing studies, clinical trials, funding opportunities, and research initiatives, and browse our research library.


Attend and support events that bring our Community together and raise awareness and critical funds.

NTSAD News & Events

Read the Latest News and Subscribe to our Community Newsletter.

November 2023 Issue

Community News

In this Issue:

  • Imagine & Believe 2023

  • LOTSS Think Tank

  • Virtual Biorepository

  • Family Caregivers Month

  • Giving Tuesday

  • Bid on Jewelry, Football, and


  • Thank You Sponsors and

    Auction Donors

Thank YOU for joining us at Imagine & Believe 2023!
We appreciate you and your generosity and support of children, adults, and their families.
Thank you for envisioning a world with effective treatments for Tay-Sachs, Canavan, GM1, and Sandhoff diseases.

On Thursday, November 10, 2022, the NTSAD Community will gather at the Royal Sonesta in Boston for the first in-person Imagine & Believe event in three years to commemorate NTSAD’s 65th Anniversary.

We Care for Rare

Jessie Jackson
Juvenile GM1 Disease

“Jessie (age 30) loves going on adventures! Like going to Nitro Harley Racing. She is not about to let GM1 keep her from LIVING life!”

Merlie Jackson, Jessie’s Mom