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Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

Newly Diagnosed?

Support and mentorship is here as you cope with a diagnosis of Canavan, GM1, Sandhoff or Tay-Sachs.

Day of Hope 2022

Engage your community to support Rare Families and NTSAD's Research Initiative.

Clinical Trials

Learn more about the clinical trials in development that we hope lead to effective therapies.

Imagine & Believe 2022

Join us as we gather in-person once again, commemorate NTSAD's 65th Anniversary, and honor research pioneer Guangping Gao, PhD

Donate Today

Support families, advance research, and give to NTSAD.

We Care for Rare

Meet Rare Families. Read More
Be an advocate!

Your voice is important and can have a profound impact on legislation that affects our small but mighty rare disease community.

Now Accepting Cryptocurrency

Support families by giving a gift of cryptocurrency.

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Latest News

August 2022 Community News
Read NTSAD's latest e-newsletter! Sign up to receive next month's at the bottom of the home page. Read More
Sio GM1 and GM2 Clinical Trials News
Sio terminates licensing agreement. Read the joint statement from NTSAD and fellow patient advocacy groups and foundations. Read More
Day of Hope 2022
Create your own Day of Hope fundraising page! Read More

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National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging collaboration, and fostering community. Supporting families is the center of everything we do.

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