Diseases

Get reliable and accurate information about Tay-Sachs, Canavan, GM1, and Sandhoff diseases.

Family Support

Connect with our Family Services Team who will answer your questions and share resources to help you navigate a diagnosis.

Research

Learn about ongoing studies, clinical trials, funding opportunities, and research initiatives, and browse our research library.

Events

Attend and support events that bring our Community together and raise awareness and critical funds.

NTSAD News & Events

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More News
January 2026 Issue

NTSAD Community Connections

In this Issue:

  • Two New Off-Label Drug Documents Now Available

  • Juvenile Onset GM1 and GM2 Patient-led Listening Session

  • Annual Family Conference Sponsorship Opportunities

  • Share Your RADvocacy Story!

  • The 2026 Annual Family Conference – Registration Is Open!

  • Now Accepting Helping Hand Grant Applications

  • Reserve Your Annual Family Conference Hotel Room Now!

  • Mission Moment
Subscribe for News

What’s Ahead for NTSAD in 2026

January

  • Late Onset Supporting the Supporters Zoom Chat January 8 (second Thursday of each month)
  • Late Onset Zoom Chat January 28 (last Wednesday of each month)

February

  • Rare Disease Month
  • Late Onset Supporting the Supporters Zoom Chat February 12 (second Thursday of each month)
  • Late Onset Zoom Chat February 25 (last Wednesday of each month)

  • Rare Disease Day February 28

Join the NTSAD Team!

At NTSAD, we are dedicated to supporting families and advancing research. Join us in making a meaningful impact in the lives of people affected by Tay-Sachs, Canavan, GM1 and Sandhoff diseases.

Current Opportunities:

Administrative Assistant

Director of Development*

(*Previous experience required.)

For more information and to apply, please send a cover letter with salary requirements to jobs@ntsad.org.

**Apply today and become a part of the NTSAD family!**

We Care for Rare

Jessie Jackson
Juvenile GM1 Disease

“Jessie (age 30) loves going on adventures! Like going to Nitro Harley Racing. She is not about to let GM1 keep her from LIVING life!”

Merlie Jackson, Jessie’s Mom