National Tay-Sachs & Allied Diseases Association

The Power of Community

Diseases

Get reliable and accurate information about Tay-Sachs, Canavan, GM1, and Sandhoff diseases.

Family Support

Connect with our Family Services Team who will answer your questions and share resources to help you navigate a diagnosis.

Research

Learn about ongoing studies, clinical trials, funding opportunities, and research initiatives, and browse our research library.

Events

Attend and support events that bring our Community together and raise awareness and critical funds.

NTSAD News & Events

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December 2024 Issue

Community Connections

In this Issue:

  • 2025 Annual Family Conference
  • Conference Sponsorship Opportunities
  • Voice of the Patient Report Published in Human Gene Therapy Journal
  • Prenatal Screening: Billion to One
  • Rare Pediatric Disease Priority Review Voucher Program
  • Giving Tuesday
  • Worldwide Candle Lighting
  • Mission Moment
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Join the NTSAD Team!

The National Tay-Sachs & Allied Diseases Association (NTSAD) is currently seeking a passionate and dedicated individual to fill the following position:

Manager of Development

We are also seeking an experienced and motivated Manager of Development to lead our fundraising efforts and drive our development strategies. If you have a strong background in development and a passion for making a difference, this is the opportunity for you.

At NTSAD, we are dedicated to supporting families and advancing research for ultra rare genetic disorders. Join us in making a meaningful impact in the lives of people affected by Tay-Sachs, Canavan, GM1 and Sandhoff diseases.

For more information and to apply, please send a cover letter with salary requirements to jobs@ntsad.org.

We look forward to welcoming new team members who share our commitment to hope and healing.

**Apply today and become a part of the NTSAD family!**

Join the NTSAD Team!

At NTSAD, we are dedicated to supporting families and advancing research. Join us in making a meaningful impact in the lives of people affected by Tay-Sachs, Canavan, GM1 and Sandhoff diseases.

Current Opportunities:

Administrative Assistant

Director of Development*

(*Previous experience required.)

For more information and to apply, please send a cover letter with salary requirements to jobs@ntsad.org.

**Apply today and become a part of the NTSAD family!**

We Care for Rare

Jessie Jackson
Juvenile GM1 Disease

“Jessie (age 30) loves going on adventures! Like going to Nitro Harley Racing. She is not about to let GM1 keep her from LIVING life!”

Merlie Jackson, Jessie’s Mom