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Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

Support Rare

Support families, advance research, and give to NTSAD.
Keep on Imagining and Believing!

Together we raised $120,000 for Family Services. Thank you to Executive Director and Honoree Sue Kahn for 14 years of driving research and supporting Rare Families.

Highlighting Siblings

We are pleased to introduce four outstanding siblings who are the 2021-2022 Gottlieb Scholarship Recipients! Read More
Newly Diagnosed?

The NTSAD family services team is here to support you and help you navigate current and upcoming clinical trials.

Eight Trials & Counting!

Trials for Canavan, GM1, Sandhoff and Tay-Sachs are open, and more in development that we hope lead to effective therapies.

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Latest News

Executive Leadership Transition
After 14 years, Sue Kahn plans to step down. Read a letter from Sue and learn more about the position. Read More
Kathleen M. Flynn NTSAD's new CEO
Kathleen started at NTSAD this November. Read the press release. Read More
Make the Rare Diagnosis
Raising awareness about the importance of earlier diagnosis for Canavan, GM1, Sandhoff and Tay-Sachs. Read More

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NTSAD leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging collaboration, and fostering community. Supporting families is the center of everything we do.

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