Community News

Get the latest news from NTSAD about our Community, the research that provides hope, and what is happening in the world of rare disease.

Latest Issue – February 2024

In this issue:

  • In Loving Memory: Judy Gottlieb

  • GM2 PFDD Meeting

  • World Rare Disease Day

  • 2024 Annual Family Conference

  • 2023 Impact Report

  • Expanded Carrier Screening

  • MFRF’s “Sweetness and Laughter” Celebration


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In Loving Memory: Judy Gottlieb  

This month’s Community News is dedicated to Judy Gottlieb, who passed away in late January. Judy, a beloved, long-time member of our community, through her extraordinary generosity helped many healthy siblings of children and adults affected by Tay-Sachs, Canavan, GM1, and Sandhoff diseases pursue their dreams.

After experiencing both love and loss, Judy Gottlieb, a mother and grandmother from New Jersey, chose to move forward in her life by giving to families like hers. In May 2005, she established a special memorial college fund at NTSAD to honor her youngest son, Jeffrey Alan Gottlieb, who passed away in 1975 from Tay-Sachs disease, and her husband, Stanley N. Gottlieb, who passed away in 2001. It was Judy’s intent that the monies be distributed for college education, i.e., tuition, books, room, and board.

During the last 18 years, Judy had generously awarded scholarships to 56 young adults, some of whom have received multiple scholarships throughout their education. Since 2005, the Jeffrey Alan and Stanley Gottlieb Memorial Scholarship Fund has awarded nearly $100,000 in scholarships.

Judy will be remembered for her compassion and for the lasting impact she has made. Judy’s family plans to continue the Gottlieb scholarship funding, and Judy’s mission to help healthy siblings further their education.

Make a gift in Judy’s memory to the Gottlieb Scholarship Fund.