Cayden’s Day of Hope

Spreading awareness for Sandhoff disease and raising funds for research in honor of Cayden.

As many of you know our son Cayden was diagnosed with Sandhoff disease- an extremely rare neurological condition that causes progressive damage to the brain and spinal cord. Unfortunately, there is no cure, but there is treatment on the horizon. We need your help! Our family is raising awareness and funds for research with NTSAD. We couldn’t do this without you! Your donation, no matter the amount, can create a significant impact.

A few other ways you can show your support to all families like ours is by joining us in Moving a Mile for Hope on September 9th. Post a picture on social media of you walking, running, dancing and use the hashtag #Iwalkforcayden #NTSADDOH23 and #NTSADMoveforHope, and tag @NTSAD. You can also find more @cheeringforcayden on Instagram. Lastly, you can also purchase a Day of Hope Bracelet. Be a part of the change by donating what you can to receive a bracelet. Every contribution helps! Fill out this form to order yours now!

Thank you from the bottom of our hearts for your support!

Ways to Give

Credit Card

Click below to make a gift with your credit card.


Click below to make a gift via PayPal.

Mail or Phone

(617) 277-4463

Checks payable to NTSAD.

Mailing Address:
2001 Beacon Street
Suite 204
Boston, MA 02135.

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