The Franzen Family raises funds for research in memory of Rex through their annual Day of Hope event, Ride for Rex.
Rex Lairdsen Franzen
October 10, 2014 – October 22, 2016
Rex’s life would seem too short to many, but those who were touched by him understood that the quality of his existence far exceed the quantity of his time on earth. His gentle smile could melt the hearts of those around him and his giggle could make anyone laugh out loud with him. Although he never spoke a word, his voice and thoughts could always be heard. He possessed amazing strength even though his little body was made weak by Sandhoff Disease.
With his courage, he led us to believe that each day is a blessing and an opportunity to create lasting memories. He could spend hours rocking in his favorite chair while cuddling close to those he loved so much. He enjoyed music, the wind in his hair and the rustling of leaves in the trees. He loved to be massaged with coconut oil and the sound of his Daddy’s voice. He loved to be surrounded by his brothers playing and to be snuggled close to his mamma while nursing.
Rex lived and died without sin and truly wanted nothing more in his short life than to be loved and caressed. With his passing, we want to remind others that his life is one to be celebrated and remembered. Please help us honor his memory by learning more about his fatal genetic disease, Sandhoff, and spreading awareness in your communities. Donating to the National Tay-Sachs & Allied Diseases Association, a not-for-profit organization, will help fund research so that no other family has to know the pain of losing their child to these genetic diseases.
With grateful hearts,
Craig, Amber, Erick, Seth, Piper and Gus Franzen
P.S. If you have performed a random act of kindness in memory of Rex, please share your kindness moment on his Facebook Page – Ride for Rex – by clicking on this link.
Please include a note that the gift is in memory of Rex.
2001 Beacon Street
Boston, MA 02135.
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National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging collaboration, and fostering community. Supporting families is the center of everything we do.
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The National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging collaboration, and fostering community. Supporting families is the center of everything we do.
Get the latest news from NTSAD about our Community, the research that provides hope, and what is happening in the world of rare disease.
2001 Beacon Street, Suite 204
Boston, MA 02135
(617) 277-4463 firstname.lastname@example.org
National Tay-Sachs & Allied Diseases Association
2001 Beacon Street, Suite 204, Boston, MA 02135
(617) 277-4463 | email@example.com