Vayle Rose Fund

Supports Canavan research, family services, and raises awareness for carrier screening.

$43,585

Fundraising Goal: $50,000

In March 2019, my daughter Vayle Rose, who was not even six months old, was diagnosed with Canavan disease, an extremely rare neurological disorder that causes progressive damage to nerve cells in the brain. As a single mom whose only child has a life-threatening disease, my life turned completely upside down. The hopes and dreams I had for her, for us, were shattered, and my life felt like it was over. Since her diagnosis, I strive to give Vayle the best life possible as she fights every single day against this horrible disease.

Why we started the fund

Lorem ipsum dolor sit amet, consectetur adipiscing elit. Integer elementum enim enim, vitae dictum libero ullamcorper ac. Proin ut orci lobortis, elementum magna scelerisque, sollicitudin leo. Fusce eget dolor eget nibh tincidunt finibus ac at tellus. Vestibulum ante ipsum primis in faucibus orci luctus et ultrices posuere cubilia curae; Curabitur mauris felis.

Maecenas condimentum nisl nec lacus suscipit, at lobortis nibh tincidunt. Aenean iaculis a nisl non vestibulum. Integer elementum id nisi et mollis. Etiam feugiat, odio commodo condimentum dapibus, urna purus commodo sapien, vel pulvinar enim orci ut eros.

How the funds raised will be used

Lorem ipsum dolor sit amet, consectetur adipiscing elit. Integer elementum enim enim, vitae dictum libero ullamcorper ac. Proin ut orci lobortis, elementum magna scelerisque, sollicitudin leo. Fusce eget dolor eget nibh tincidunt finibus ac at tellus. Vestibulum ante ipsum primis in faucibus orci luctus et ultrices posuere cubilia curae; Curabitur mauris felis.

Maecenas condimentum nisl nec lacus suscipit, at lobortis nibh tincidunt. Aenean iaculis a nisl non vestibulum. Integer elementum id nisi et mollis. Etiam feugiat, odio commodo condimentum dapibus, urna purus commodo sapien, vel pulvinar enim orci ut eros.

Thank you from the bottom of our hearts for your support!

Ways to Give

Credit Card

Click below to make a gift with your credit card.

PayPal

Click below to make a gift via PayPal.

Mail or Phone Donations

(617) 277-4463

Checks payable to NTSAD.

Mailing Address:
2001 Beacon Street
Suite 204
Boston, MA 02135.

Share this story...